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03/29/2020 01:29 AM
Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20190&cosponId=30922
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House of Representatives
Session of 2019 - 2020 Regular Session

MEMORANDUM

Posted: January 15, 2020 12:03 PM
From: Representative Francis X. Ryan
To: All House members
Subject: RESOLUTION ~ MARFAN SYNDROME
 
Please join me in co-sponsoring a resolution recognizing February 2020 as Marfan Syndrome Awareness Month in Pennsylvania.

Marfan Syndrome is a genetic disorder that affects the body’s connective tissue. Marfan Syndrome is caused by a defect in the gene that tells the body how to make Fibrillin-1. Approximately 1 in 5,000 people have this disease which effects both men and women of all races and ethnic groups.

People suffering from Marfan Syndrome can experience some of the following symptoms: disproportionately long arms, legs and fingers, indented chest bone, abnormally curved spine and heart murmurs. One of the most serious threats of Marfan Syndrome is aortic enlargement.

Currently, there is no cure for this disease, but early diagnosis and proper treatment is key to living a full life.

I hope you will consider joining me in raising awareness for Marfan Syndrome and encouraging research to fight this disease. Thank you for your consideration.



Introduced as HR677