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Pennsylvania State Senate
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=S&SPick=20170&cosponId=24149
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Senate of Pennsylvania
Session of 2017 - 2018 Regular Session

MEMORANDUM

Posted: June 14, 2017 12:23 PM
From: Senator Wayne Langerholc, Jr.
To: All Senate members
Subject: Recognizing June 30th, 2017 as “Arthrogryposis Awareness Day”
 
I plan on introducing a resolution which will designate June 30th as Arthrogryposis Awareness Day in Pennsylvania.

Arthrogryposis is a condition which affects roughly 1 in 3,000 babies. This condition is when a child is born without joint contractures meaning some of their joints don’t move as much as normal and may be stuck in one position. Often, the muscles around these joints are thin, weak, stiff or even missing. Additionally, extra tissue may have formed around the joints, effectively holding them in place.

The main cause of arthrogryposis is fetal akinesia. This means the baby does not move around inside the womb as much as normal. Starting in early pregnancy, moving helps a baby's joints, muscles and tendons develop. If a baby doesn't move much, these parts may not develop well, and extra tissue may form in the joints, making movement harder. Fetal akinesia usually has nothing to do with what the mother did or did not do while she was pregnant.

By recognizing June 30, 2017 as Arthrogryposis Awareness Day, I am encouraging citizens across the Commonwealth to take a proactive approach in learning more about Arthrogryposis and learning ways they can make a difference in the lives of those living with Arthrogryposis.

Please join me in co-sponsoring this important resolution, and designating June 30, 2017 as Arthrogryposis Awareness Day in Pennsylvania.



Introduced as SR164