|Posted:||October 2, 2019 03:50 PM|
|From:||Representative Doyle Heffley|
|To:||All House members|
|Subject:||Peroxisomal Disorder Awareness Day|
|In the near future, I plan to introduce a resolution designating October 5, 2019 as 'Peroxisomal Disorder Awareness Day' in Pennsylvania.
Disorders that impact peroxisomes cause damage to the kidneys and liver, and the endocrine, hepatic gastrointestinal and neurological organ systems.
There are very few treatments and no cure for PBD, ZSS and related single enzyme deficiencies, which impact an estimated 1 in 50,000 live births annually.
I hope you consider joining me in support of this resolution to raise public awareness and understanding of PBD, ZSS and related single enzyme deficiencies.
Introduced as HR548