|Posted:||February 14, 2017 11:27 AM|
|From:||Representative Thomas P. Murt|
|To:||All House members|
|Subject:||Hereditary Spastic Paraplegia Awareness Month – May 2017|
|I am planning to introduce a resolution designating May 2017 as “Hereditary Spastic Paraplegia Awareness Month.”
Hereditary Spastic Paraplegia, type 47 (SPG47) is an ultra-rare neurodegenerative disease, with only 11 confirmed cases worldwide. There is no cure. Currently SPG47 affects only two children in the U.S., one of which resides in Pennsylvania.
Please join me as a cosponsor to bring awareness to this rare disease.
Introduced as HR200