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House Co-Sponsorship Memoranda
House of Representatives
Session of 2015 - 2016
Regular Session
MEMORANDUM
| Posted: | June 22, 2016 10:16 AM |
|---|---|
| From: | Representative Tarah Toohil |
| To: | All House members |
| Subject: | June 2016 as "Cockayne Syndrome Awareness Month" |
| In the near future, I plan to introduce a House Resolution recognizing June 2016 as “Cockayne Syndrome Awareness Month” in the Commonwealth of Pennsylvania. Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, premature aging, sensitivity to sunlight, moderate to profound developmental and neurological delays and a shortened lifespan. In order for a child to be affected by CS, he or she must inherit a mutation in the same CS gene from both parents. Once parents are known carriers, they have a 1 in 4 (25%) chance of having another child with CS. There is currently no known cure for CS. Therefore, I am introducing this resolution in hope that it will increase awareness across the Commonwealth about this condition. Thank you for your interest and support. |
Introduced as HR954