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Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20150&cosponId=20451
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House of Representatives
Session of 2015 - 2016 Regular Session

MEMORANDUM

Posted: June 22, 2016 10:16 AM
From: Representative Tarah Toohil
To: All House members
Subject: June 2016 as "Cockayne Syndrome Awareness Month"
 
In the near future, I plan to introduce a House Resolution recognizing June 2016 as “Cockayne Syndrome Awareness Month” in the Commonwealth of Pennsylvania.

Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, premature aging, sensitivity to sunlight, moderate to profound developmental and neurological delays and a shortened lifespan. In order for a child to be affected by CS, he or she must inherit a mutation in the same CS gene from both parents. Once parents are known carriers, they have a 1 in 4 (25%) chance of having another child with CS. There is currently no known cure for CS.

Therefore, I am introducing this resolution in hope that it will increase awareness across the Commonwealth about this condition.

Thank you for your interest and support.



Introduced as HR954