Posted: | January 16, 2014 11:56 AM |
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From: | Representative Todd Rock |
To: | All House members |
Subject: | Resolution - Angelman Syndrome Awareness Day in Pennsylvania |
In the near future, I will be introducing a resolution designating February 15th 2014 as “Angelman Syndrome Awareness Day” in Pennsylvania. Angelman syndrome is a neurogenetic disorder characterized by severe intellectual and developmental disability, speech limitations, motor difficulties, sleep disturbance, seizures, jerky movements (especially hand-flapping), frequent laughter or smiling, and usually a happy demeanor. However, individuals with Angelman syndrome can have normal life spans and generally do not show developmental regression as they age. Early diagnosis and tailored interventions and therapies help improve quality of life. It is important that we designate February 15, 2014 as "Angelman Syndrome Awareness Day" and continue to research early detection and effective treatments. I hope you will join me in sponsoring this resolution. |
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Introduced as HR628