PRINTER'S NO. 1393
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No.
273
Session of
2019
INTRODUCED BY AUMENT, PHILLIPS-HILL, BARTOLOTTA, MARTIN, BROWNE,
J. WARD, DINNIMAN, TARTAGLIONE, BREWSTER, MENSCH, BAKER,
COSTA AND SABATINA, NOVEMBER 18, 2019
INTRODUCED AND ADOPTED, NOVEMBER 18, 2019
A RESOLUTION
Commending the International 22q11.2 Foundation, Inc., and
recognizing November 22, 2019, as "22q Awareness Day" in
Pennsylvania.
WHEREAS, The International 22q11.2 Foundation, Inc., the
longest-standing entity of its kind, focuses on the complex
needs of people with a loss of genetic material from chromosome
22; and
WHEREAS, Started by a small group of parents working with one
clinical expert, the foundation has faithfully pursued its
purpose to connect and support families, specialists and
researchers since 2003; and
WHEREAS, Through the foundation's global network and
alliances, other known clinical conditions such as DiGeorge
syndrome and velocardiofacial syndrome have been merged into one
named chromosomal microdeletion syndrome, 22q11.2 deletion
syndrome; and
WHEREAS, In October 2018, the American Journal of Medical
Genetics published papers by foundation medical advisory board
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members in a special issue dedicated to the syndrome; and
WHEREAS, The foundation's cornerstone programs are "22q at
the Zoo Worldwide Awareness Day," "22q and Boo," "22k for 22q,"
"2.2 for 22q" and "22q Awareness Month"; and
WHEREAS, Foundation resources have reached an estimated
50,000 families; and
WHEREAS, The Senate notes the foundation's record of
organizing awareness campaigns, advancing research, engaging in
advocacy with other support groups and delivering cutting-edge
information to improve quality of life and coordination of care;
therefore be it
RESOLVED, That the Senate commend the International 22q11.2
Foundation, Inc., and recognize November 22, 2019, as "22q
Awareness Day" in Pennsylvania; and be it further
RESOLVED, That a copy of this resolution be transmitted to
the International 22q11.2 Foundation, Inc., PO Box 532, Matawan,
NJ 07747.
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