PRINTER'S NO. 1281
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No.
249
Session of
2019
INTRODUCED BY J. WARD, MASTRIANO, DINNIMAN, FONTANA, STREET,
IOVINO, MARTIN, PHILLIPS-HILL, BREWSTER, BAKER, BROWNE,
TARTAGLIONE AND SCHWANK, OCTOBER 21, 2019
INTRODUCED AND ADOPTED, OCTOBER 21, 2019
A RESOLUTION
Recognizing September 7, 2019, as "World Duchenne Awareness Day"
in Pennsylvania.
WHEREAS, Duchenne muscular dystrophy (Duchenne) is the most
common fatal genetic disorder diagnosed in childhood, affecting
approximately one in every 5,000 live male births each year; and
WHEREAS, The Duchenne gene is found on the x-chromosome and
while it primarily affects boys, it occurs across all races and
cultures; and
WHEREAS, Duchenne results in progressive loss of strength and
is caused by a mutation in the gene that encodes for dystrophin;
and
WHEREAS, Because dystrophin is absent, the muscle cells are
easily damaged and the progressive muscle weakness leads to
serious medical problems, particularly issues relating to the
heart and lungs; and
WHEREAS, People with Duchenne typically live into their late
twenties; and
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WHEREAS, Duchenne can be passed from parent to child, but
approximately 35% of cases occurs because of a random
spontaneous mutation, which means it can affect anyone; and
WHEREAS, Although there are medical treatments that may help
slow its progression, there is currently no cure for Duchenne;
and
WHEREAS, Because it is a rare disease, one of our greatest
tools in the fight to end Duchenne is raising awareness; and
WHEREAS, On September 7, 2019, the fifth "World Duchenne
Awareness Day," took place and Duchenne organizations around the
world raised awareness for all people living with Duchenne
muscular dystrophy; therefore be it
RESOLVED, That the Senate recognize September 7, 2019, as
"World Duchenne Awareness Day" in Pennsylvania and encourage the
residents of this Commonwealth to increase their understanding
and awareness of Duchenne muscular dystrophy.
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