PRINTER'S NO. 3161
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
677
Session of
2020
INTRODUCED BY RYAN, BERNSTINE, BIZZARRO, BROOKS, BURNS, CIRESI,
FREEMAN, HELM, KIM, KINSEY, KORTZ, LONGIETTI, MILLARD, MURT,
READSHAW, ROTHMAN, SCHMITT AND SONNEY, JANUARY 17, 2020
REFERRED TO COMMITTEE ON HEALTH, JANUARY 17, 2020
A RESOLUTION
Designating the month of February 2020 as "Marfan Syndrome
Awareness Month" in Pennsylvania.
WHEREAS, Marfan syndrome is a genetic disorder that affects
the body's connective tissue; and
WHEREAS, Connective tissue allows bones, ligaments, muscles,
blood vessels and heart valves to stay strong and flexible; and
WHEREAS, Approximately 1 in 5,000 people have Marfan syndrome
and the genetic disorder affects men and women of all races and
ethnic groups; and
WHEREAS, Roughly three out of every four people with Marfan
syndrome inherit the genetic disorder from a parent; and
WHEREAS, Recognizing the signs and symptoms of Marfan
syndrome can save lives, but the signs and symptoms of the
genetic disorder vary greatly depending on the part of the body
that is affected; and
WHEREAS, The most common symptoms of Marfan syndrome include
disproportionately long arms, legs and fingers, an indented
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chest bone, an abnormally curved spine and heart murmurs; and
WHEREAS, There is no cure for Marfan syndrome, but there are
various treatment options, including medication, limitations on
physical activity, surgery and methods to prevent or manage
complications of the genetic disorder; and
WHEREAS, It is imperative that residents of this Commonwealth
are aware of Marfan syndrome and a cure, if found, for the
genetic disorder; therefore be it
RESOLVED, That the House of Representatives designate the
month of February 2020 as "Marfan Syndrome Awareness Month" in
Pennsylvania; and be it further
RESOLVED, That the House of Representatives recognize the
importance of spreading awareness about Marfan syndrome and
encouraging research opportunities to find a cure for the
genetic disorder.
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