years of age, but can begin as early as childhood; and
WHEREAS, ARPKD is passed from parent to child genetically by
recessive inheritance; and
WHEREAS, ARPKD is a rare form of PKD and occurs in 1 in
20,000 children worldwide; and
WHEREAS, Symptoms of ARPKD begin in the earliest months of
life, even in the womb; and
WHEREAS, ARPKD is very serious because it progresses rapidly
and is often fatal in the first few months of life; and
WHEREAS, ACKD is most often associated with kidney failure
and dialysis because it can cause long-term damage and severe
scarring in the kidney; and
WHEREAS, ACKD develops in approximately 90% of people who
have been on dialysis for at least five years; and
WHEREAS, Symptoms that may indicate that an individual has
PKD include back or side pain, an increase in the size of the
abdomen, blood in the urine, frequent bladder or kidney
infections, fluttering or pounding in the chest and high blood
pressure; and
WHEREAS, High blood pressure is the most common sign of PKD;
and
WHEREAS, If high blood pressure is treated, the treatment can
help slow or even prevent kidney failure; and
WHEREAS, Approximately 50% of individuals with PKD have
kidney failure by 60 years of age, and 60% of individuals have
kidney failure by 70 years of age; and
WHEREAS, The only options available for individuals
experiencing kidney failure are dialysis or a kidney transplant;
and
WHEREAS, Although PKD has no cure, supportive treatments can
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