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PRINTER'S NO. 1680
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
300
Session of
2019
INTRODUCED BY KRUEGER, BIZZARRO, SONNEY, HENNESSEY, KORTZ,
KINSEY, VITALI, FREEMAN, BROWN, YOUNGBLOOD, KULIK, SCHLEGEL
CULVER, DiGIROLAMO, WILLIAMS, READSHAW, CALTAGIRONE, MILLARD,
HILL-EVANS, LONGIETTI, NEILSON, CIRESI, CAUSER AND DeLUCA,
MAY 2, 2019
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
MAY 2, 2019
A RESOLUTION
Designating the month of May 2019 as "Fibromuscular Dysplasia
Awareness Month" in Pennsylvania.
WHEREAS, Fibromuscular dysplasia (FMD) is a disease that
causes abnormal cell growth of the arterial wall, often giving
the appearance of a string of beads, and can lead to aneurysms
and areas of narrowing and tearing of the arterial wall; and
WHEREAS, FMD patients present the same symptoms that affect
much of the general population, including hypertension,
headaches and dizziness; and
WHEREAS, There has been little progress in understanding FMD
since it was first diagnosed in 1938; and
WHEREAS, There is no known cause or cure for the disease, but
symptoms can be managed through treatment; and
WHEREAS, FMD is classified as a rare disease, though many
researchers believe it is underdiagnosed; and
WHEREAS, Data suggests that up to 4% of the world's
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population may have FMD; and
WHEREAS, Women comprise 90% of patients diagnosed with FMD;
and
WHEREAS, It has been recognized that many women who are
diagnosed with spontaneous coronary artery dissections (SCAD)
have underlying FMD; and
WHEREAS, SCAD can lead to acute coronary syndrome, heart
attack and death; and
WHEREAS, SCAD is more common than previously thought and is
associated with pregnancy and physical and emotional stress; and
WHEREAS, Individuals and families affected by FMD often
experience isolation, have difficulty in obtaining accurate and
timely diagnosis, have less than optimal treatment options and
must educate their own physicians about the disease; and
WHEREAS, The Fibromuscular Dysplasia Society of America
(FMDSA) was founded in March 2003 and over the past 16 years has
been active and successful in raising public and physician
awareness of the disease, increasing patient support and working
with researchers around the world; and
WHEREAS, FMDSA is also funding the United States Registry for
Fibromuscular Dysplasia, which will be used to learn how to
better diagnose and treat patients with FMD; and
WHEREAS, FMDSA is organizing a global observance of FMD to
have patients, medical professionals and researchers join
together to focus attention on FMD as a public health issue;
therefore be it
RESOLVED, That the House of Representatives designate the
month of May 2019 as "Fibromuscular Dysplasia Awareness Month"
in Pennsylvania.
20190HR0300PN1680 - 2 -
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