PRINTER'S NO. 1246
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
205
Session of
2019
INTRODUCED BY ULLMAN, BIZZARRO, BURGOS, BURNS, CALTAGIRONE,
T. DAVIS, DiGIROLAMO, DONATUCCI, FRANKEL, FREEMAN, HILL-
EVANS, HOWARD, KINSEY, KORTZ, LONGIETTI, MARKOSEK, McNEILL,
MILLARD, MULLINS, MURT, NEILSON, PASHINSKI, READSHAW, SONNEY,
WARREN, WEBSTER, WILLIAMS, YOUNGBLOOD AND BARRAR,
APRIL 8, 2019
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
APRIL 8, 2019
A RESOLUTION
Recognizing the month of April 2019 as "World HIE Awareness
Month" in Pennsylvania.
WHEREAS, All residents of this Commonwealth should be aware
that 2 to 3 out of every 1,000 live births are impacted by
hypoxic-ischemic encephalopathy (HIE); and
WHEREAS, Thousands of families are affected by HIE worldwide
and only a small fraction of them find the psychosocial support
they need to tackle the challenges their children may face as a
result of HIE; and
WHEREAS, HIE occurs when the brain is deprived of oxygen from
various causes, including placental insufficiency, uterine
rupture, umbilical cord knots, cord compression, low maternal
blood pressure, trauma during delivery, aneurysm rupture and
near Sudden Infant Death Syndrome events; and
WHEREAS, Between 70% and 80% of infants born with HIE
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survive, however, of those who survive, 50% to 70% experience
seizures, and 30% to 40% develop a developmental disability,
including cerebral palsy, epilepsy, vision loss, hearing loss,
feeding issues and cognitive or speech delays; and
WHEREAS, The impact of each child's injury is unique and
based on multiple factors, including which parts of the brain
are impacted and the severity of the oxygen deprivation; and
WHEREAS, Hope for HIE is an organization which supports and
connects families affected by HIE; and
WHEREAS, Hope for HIE provides resources, information, advice
and personalized support to families affected by HIE; and
WHEREAS, Through Hope for HIE, families touched by an HIE
diagnosis are given access to a community that shares experience
with HIE and where families feel that they are supported; and
WHEREAS, The goal of "World HIE Awareness Month" is to
educate and connect families affected by HIE; therefore be it
RESOLVED, That the House of Representatives recognize the
month of April 2019 as "World HIE Awareness Month" in
Pennsylvania.
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