PRINTER'S NO. 1705
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No.
336
Session of
2018
INTRODUCED BY MARTIN, GREENLEAF, EICHELBERGER, BARTOLOTTA,
FONTANA, DINNIMAN, VULAKOVICH, BROWNE, HUGHES, SABATINA,
HUTCHINSON, KILLION, SCHWANK, MENSCH, AUMENT, RAFFERTY,
SCAVELLO, COSTA AND BREWSTER, APRIL 24, 2018
INTRODUCED AND ADOPTED, APRIL 24, 2018
A RESOLUTION
Designating the month of May 2018 as "Ehlers-Danlos Syndrome
Awareness Month" in Pennsylvania.
WHEREAS, Ehlers-Danlos syndrome, also known as EDS, is a
group of genetic disorders affecting connective tissue in the
body, characterized by looseness, instability and dislocations
of the joints and fragile and often hyperelastic skin that
bruises, scars and tears easily; and
WHEREAS, In extreme cases, EDS can cause unpredictable
arterial and organ rupture that can lead to acute pain,
excessive internal bleeding, shock, stroke and premature death;
and
WHEREAS, In 1936, EDS was named after the medical research
and contributions of Edvard Ehlers in 1901 and Henri-Alexandre
Danlos in 1908; and
WHEREAS, It is estimated that EDS is prevalent in 1 in 2,500
to 1 in 5,000 people with fewer than 200,000 cases diagnosed in
the United States each year; and
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