PRINTER'S NO. 3457
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
884
Session of
2018
INTRODUCED BY MURT, BIZZARRO, DiGIROLAMO, HENNESSEY, HILL-EVANS,
KINSEY, LONGIETTI, MILLARD, NEILSON, QUIGLEY, READSHAW, RYAN,
SAYLOR, TOOHIL AND WARD, APRIL 30, 2018
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
APRIL 30, 2018
A RESOLUTION
Designating May 2, 2018, as "Nonketotic Hyperglycinemia
Awareness Day" in Pennsylvania.
WHEREAS, Nonketotic hyperglycinemia (NKH), also known as
glycine encephalopathy, is a severe and rare disorder resulting
from the inability to break down glycine, a neurotransmitter;
and
WHEREAS, A buildup of glycine in the blood and spinal fluid
affects nervous tissues, including the brain, causing seizures,
breathing and feeding difficulties, muscle limpness and
lethargy; and
WHEREAS, NKH usually becomes apparent after birth; and
WHEREAS, Many babies with NKH do not survive infancy; and
WHEREAS, NKH affects 1 out of every 60,000 births; and
WHEREAS, Fewer than 500 children worldwide are living with
NKH; and
WHEREAS, There is currently no cure for NKH; and
WHEREAS, Very few treatment options are available; and
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WHEREAS, It is of vital importance to raise awareness of this
disease; therefore be it
RESOLVED, That the House of Representatives designate May 2,
2018, as "Nonketotic Hyperglycinemia Awareness Day" in
Pennsylvania; and be it further
RESOLVED, That the House of Representatives recognize the
importance of raising awareness of NKH in order to improve the
lives of those affected by it.
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