PRINTER'S NO. 3293
No. 617 Session of 2008
INTRODUCED BY CLYMER, BAKER, BEYER, BISHOP, BOBACK, CALTAGIRONE,
CAUSER, COHEN, CONKLIN, CREIGHTON, DALEY, DePASQUALE,
DONATUCCI, FLECK, FRANKEL, GALLOWAY, GEIST, GEORGE, GIBBONS,
GILLESPIE, GINGRICH, GODSHALL, GOODMAN, GRUCELA, HELM,
HENNESSEY, HERSHEY, HESS, HUTCHINSON, JAMES, KULA, MAJOR,
McILHATTAN, MILLARD, MILNE, MOUL, MUSTIO, NAILOR, D. O'BRIEN,
O'NEILL, PALLONE, PARKER, PAYNE, PHILLIPS, PICKETT, RAMALEY,
RAPP, READSHAW, REICHLEY, ROSS, RUBLEY, SAINATO, SCAVELLO,
SIPTROTH, SWANGER, TRUE, VULAKOVICH, WALKO, WATSON, J. WHITE,
WOJNAROSKI, YOUNGBLOOD, FABRIZIO, K. SMITH AND THOMAS,
MARCH 5, 2008
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
MARCH 5, 2008
A RESOLUTION
1 Designating the week of March 16 through 22, 2008, as "MPS Week"
2 in Pennsylvania in memory of Ryan Taylor Mask of
3 Sellersville, Bucks County.
4 WHEREAS, Mucopolysaccharidoses (MPS) are rare inherited
5 metabolic disorders affecting 1 in 25,000 people; and
6 WHEREAS, MPS symptoms are not apparent at birth; and
7 WHEREAS, MPS irreversibly damages the liver, spleen, heart
8 and brain; and
9 WHEREAS, MPS impairs speech and hearing; and
10 WHEREAS, Some affected children develop severe retardation;
11 and
12 WHEREAS, Few children with MPS reach adulthood; and
13 WHEREAS, Research has yielded limited federally approved drug
1 treatments for some MPS disorders; and
2 WHEREAS, Enzyme replacement therapy and stem cell
3 transplantation are experimental treatments; and
4 WHEREAS, Early detection and early intervention by parents,
5 teachers and medical providers can improve the quality of life
6 of children with MPS; and
7 WHEREAS, The National MPS Society supports research funding,
8 services, public awareness and scholarship programs; and
9 WHEREAS, Ryan Taylor Mask's family has hosted eight annual
10 five-kilometer races in Sellersville, raising tens of thousands
11 of dollars on behalf of the National MPS Society; and
12 WHEREAS, Ryan, son of Stephen Girard and Dorothy Jean Mask,
13 died January 12, 2008, at 17 years of age; therefore be it
14 RESOLVED, That the House of Representatives designate the
15 week of March 16 through 22, 2008, as "MPS Week" in Pennsylvania
16 in memory of Ryan Taylor Mask of Sellersville, Bucks County; and
17 be it further
18 RESOLVED, That a copy of this resolution be transmitted to
19 the family of Ryan Taylor Mask.
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