PRINTER'S NO. 4423
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
1013
Session of
2020
INTRODUCED BY CRUZ, YOUNGBLOOD, SCHLOSSBERG, BOBACK, HOWARD,
GALLOWAY, DRISCOLL, BURNS, McNEILL, BROWN, SAYLOR, MILLARD,
LONGIETTI, HEFFLEY, MADDEN, MALAGARI, READSHAW, KINSEY,
SCHLEGEL CULVER AND FARRY, SEPTEMBER 25, 2020
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
SEPTEMBER 25, 2020
A RESOLUTION
Designating the month of September 2020 as "Krabbe Disease
Awareness Month" in Pennsylvania.
WHEREAS, Globoid cell leukodystrophy, commonly known as
Krabbe disease, is an inherited degenerative disorder of the
central and peripheral nervous systems; and
WHEREAS, Krabbe disease is one of a group of genetic
disorders called leukodystrophies; and
WHEREAS, The disease most often affects infants, with onset
before six months of age, but can occur in adolescence or
adulthood; and
WHEREAS, Symptoms include irritability, unexplained fever,
limb stiffness, seizures, feeding difficulties, vomiting,
slowing of mental and motor development, muscle weakness,
spasticity, deafness and blindness; and
WHEREAS, Infantile Krabbe disease affects 1 in 100,000
infants in the United States; and
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