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Senate of Pennsylvania
Session of 2015 - 2016 Regular Session


Posted: May 9, 2016 09:36 AM
From: Senator Lawrence M. Farnese, Jr. and Sen. Rob Teplitz
To: All Senate members
Subject: Resolution – Recognizing May 2016 as “Amyotrophic Lateral Sclerosis Awareness (ALS) Month” in Pennsylvania
We will soon be introducing a resolution recognizing May 2016 as “Amyotrophic Lateral Sclerosis Awareness (ALS) Month” in Pennsylvania.

Commonly known as Lou Gehrig’s disease, ALS is a fatal neurodegenerative disease. As the disease progresses, patients experience difficulty breathing, swallowing and speaking and eventually, muscles atrophy so that the patient becomes a functional quadriplegic. At the same time, ALS does not affect a patient’s mental capacity, so the patient remains alert and aware of his or her loss of motor functions and the inevitable outcome of continued deterioration and death. Currently, there is no known cause, means of prevention, or cure.

This disease most commonly affects those between the ages of 40 and 70 years and affects both men and women without bias. Members of the military are twice as likely to be diagnosed with ALS as the general population, making ALS a service connected disease.

The ALS Association supports over 1,000 people with Lou Gehrig's Disease in Pennsylvania. They support families with ALS at Multidisciplinary Clinics in every region of the state. They also provide services such as in-home care, wheelchairs, home ramping, support groups, education programs, communication devices, and van transportation. A list of ALS association clinics in Pennsylvania can be found at http://webwpawv.alsa.org/site/PageNavigator/WPAWV_8_Clinics.html .

The ALS Association also provides more money for ALS research than any other organization aside from the federal government.

Please join us in recognizing and providing education on the terrible impacts of this disease by co-sponsoring this resolution.

Introduced as SR368