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House of Representatives
Session of 2019 - 2020 Regular Session


Posted: March 3, 2020 10:49 AM
From: Representative Jeanne McNeill
To: All House members
Subject: Huntington’s Disease Awareness Month (May 2020)
Huntington’s disease is a fatal genetic disorder that has a profound impact on approximately 41,000 Americans and their families. Unfortunately, the lack of awareness of the condition can leave many feeling isolated and hopeless. With these individuals in mind, I plan to introduce a resolution recognizing May 2020 as “Huntington’s Disease Awareness Month” in Pennsylvania.
Huntington’s disease causes nerve cells in the brain to progressively deteriorate until a person is no longer able to speak or walk, stripping them of their independence. While medications can alleviate some of the symptoms of Huntington’s disease, no treatment can alter the fatal course or cure the disease entirely.
As such, it is crucial that we help raise awareness of Huntington’s disease, promote efforts to research and discover a cure, and acknowledge all the individuals, families, and caregivers affected by this condition. It is my hope that you will join me in giving a voice to the entire Huntington’s disease community and extend the support that many Pennsylvanians deserve.