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House of Representatives
Session of 2019 - 2020 Regular Session


Posted: October 24, 2019 09:02 AM
From: Representative Kevin J. Boyle
To: All House members
Subject: Hemochromatosis Awareness Month
Hereditary hemochromatosis (HH) is known as the Celtic Curse. Hereditary hemochromatosis is a genetic disorder seen primarily in people whose ancestors are from Ireland, Scotland, England, or Wales.

Approximately 32 million Americans are carriers of hemochromatosis and 1.5 million Americans have the double gene which can lead to full-blown hemochromatosis. Hemochromatosis can cause accumulation of excessive iron stores, resulting in diseases of the heart, liver, sex glands, pancreas, and joints, with ultimate fatality if untreated.

Hereditary Hemochromatosis is one of the few genetic diseases which has a prevention plan so that all organ damage and premature death can be completely prevented. This makes routine screening especially important.

We ask that you co-sponsor this legislation and recognize July 2020 as “Hemochromatosis Awareness Month”.