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04/25/2024 08:31 AM
Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20190&cosponId=29682
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House of Representatives
Session of 2019 - 2020 Regular Session

MEMORANDUM

Posted: May 30, 2019 10:56 AM
From: Representative Movita Johnson-Harrell and Rep. Stephen Kinsey, Rep. Joanna E. McClinton, Rep. Jason Dawkins, Rep. Morgan Cephas, Rep. Jordan A. Harris
To: All House members
Subject: Designating June 19, 2019, as “World Sickle Cell Day”
 
Each year in the United States, approximately 2,000 infants are born with sickle cell disease, which is a group of disorders that affects hemoglobin, the molecule in red blood cells that deliver oxygen to cells throughout the body. This disease is extremely debilitating, and can be fatal.

Currently, in the United States, sickle cell disease is most common in African Americans, occurring in 1 in every 365 births, while also occurring in 1 in every 16,300 Hispanic American births. Some of the symptoms of sickle cell disease are very dangerous conditions, and can often cause excruciating pain and difficulty breathing, among other symptoms.

Given the severity and prominence of sickle cell disease, it is imperative that we raise awareness by designating June 19, 2019, as “World Sickle Cell Day” in Pennsylvania. Please join me in supporting this important legislation that will increase educational opportunities about sickle cell disease, which impacts thousands of Americans every day and millions worldwide.



Introduced as HR407