|Posted:||February 26, 2019 02:00 PM|
|From:||Representative Dan Frankel|
|To:||All House members|
|Subject:||Recognizing April I7 , 2019, as "World Hemophilia Day" in Pennsylvania|
|More than 400,000 people worldwide live with hemophilia, a rare disorder that prevents blood from clotting, causing people to bleed for long periods of time. For someone living with hemophilia, cuts and internal injuries have difficulty healing, and internal bleeding into the joints can result in pain and permanent damage.
About 10 percent of the 20,000 U.S. individuals living with hemophilia live in Pennsylvania, according to the Hemophilia Foundation.
It is my hope that this resolution helps raise awareness of this rare disorder. Together we can help those living with this condition, their families and care givers to advocate for better access to treatment and care.
Please join me by co-sponsoring this resolution.
Introduced as HR207