|Posted:||February 5, 2019 03:47 PM|
|From:||Representative Maureen E. Madden|
|To:||All House members|
|Subject:||March 2019 as “Bleeding Disorders Awareness Month” in Pennsylvania|
|Currently, an estimated three million Americans have some form of bleeding disorder. This makes even mundane, every-day incidents, such as stubbing a toe, life-threatening situations. Over the past century, medical treatment to help people cope with hemophilia has vastly improved. By 2013, gene therapy trials at three separate sites in the United States investigated possible cures for bleeding disorders. These trials offer hope, but much more work lies ahead on the path toward a cure.
The month of March was first designated as “Hemophilia Awareness Month” by President Ronald Reagan in 1986, but as of 2016 is now known as “Bleeding Disorders Awareness Month." Since then, the National Hemophilia Foundation adopted the “Red Tie” as the official symbol of bleeding disorders, and the “Red Tie Challenge." This is national fundraising and awareness activity during which participants are encouraged to make a donation at RedTieChallenge.org, wear a red tie, record and share their best red tie styles on the internet, and challenge their friends to do the same and join the fight against bleeding disorders.
Please join me to continue to raise awareness for bleeding disorders by co-sponsoring this important legislation that recognizes March 2019 as “Bleeding Disorders Awareness Month” in Pennsylvania.
Introduced as HR128