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01/17/2021 09:27 PM
Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20170&cosponId=26520
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House of Representatives
Session of 2017 - 2018 Regular Session

MEMORANDUM

Posted: October 23, 2018 09:57 AM
From: Representative Stephen Kinsey and Rep. Carol Hill-Evans
To: All House members
Subject: Resolution: “Lennox-Gastaut Syndrome Awareness Day”
 
In the near future, We will be introducing a resolution recognizing November 1, 2018, as “Lennox-Gastaut Syndrome Awareness Day” in Pennsylvania.

Lennox-Gastaut syndrome is a severe form of epilepsy that typically begins to affect children between the ages of three and five. The exact cause of Lennox-Gastaut syndrome cannot always be determined and medication is rarely effective at controlling the frequent seizures. Nearly all children with this disorder develop behavioral and intellectual disabilities that tend to worsen over time and most will require lifetime assistance in managing the usual activities of daily life.

As Lennox-Gastaut syndrome affects every child differently, researchers often find it a difficult disorder to study and treat. As such, it is essential that we raise awareness of Lennox-Gastaut syndrome and highlight the efforts made by families and researchers to better understand this condition and discover a cure. Please join us in recognizing all the children, adults, and families affected by Lennox-Gastaut syndrome by designating November 1, 2018, as “Lennox-Gastaut Syndrome Awareness Day” in Pennsylvania.

Thank you for your consideration.




Introduced as HR1183