|Posted:||March 13, 2018 10:13 AM|
|From:||Representative Marcy Toepel and Rep. Mark Longietti|
|To:||All House members|
|Subject:||Rare Disease Day in Pennsylvania – June 19, 2018|
|We are planning to introduce a resolution designating June 19, 2018 as “Rare Disease Day” in Pennsylvania.
There are approximately 1.2 million Pennsylvanians who suffer from rare diseases, and nearly 7,000 such diseases exist. According to the National Institutes of Health (NIH), nearly 30 million Americans have rare diseases, of which more than half are children. A disease is considered rare if it affects fewer than 200,000 Americans. The diseases tend to be serious and life-threatening and lack an effective treatment.
We invite you to join us in cosponsoring this resolution to increase public awareness of rare diseases.
Introduced as HR831