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https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20170&cosponId=22436
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House of Representatives
Session of 2017 - 2018 Regular Session

MEMORANDUM

Posted: January 24, 2017 12:16 PM
From: Representative Marcy Toepel and Rep. Mark Longietti
To: All House members
Subject: "Rare Disease Day" in Pennsylvania
 
In the near future, we plan to introduce a House Resolution to designate March 14, 2017 as “Rare Disease Day” in Pennsylvania.

According to the National Institutes of Health (NIH), nearly 30 million Americans have rare diseases. A disease is considered rare if it affects fewer than 200,000 Americans. There are nearly 7,000 such diseases according to NIH. They tend to be serious and/or lifelong, and approximately two-thirds of those affected are children.

We invite you to join us in cosponsoring this resolution.

Thank you!



Introduced as HR55