|Posted:||January 24, 2017 12:16 PM|
|From:||Representative Marcy Toepel and Rep. Mark Longietti|
|To:||All House members|
|Subject:||"Rare Disease Day" in Pennsylvania|
|In the near future, we plan to introduce a House Resolution to designate March 14, 2017 as “Rare Disease Day” in Pennsylvania.
According to the National Institutes of Health (NIH), nearly 30 million Americans have rare diseases. A disease is considered rare if it affects fewer than 200,000 Americans. There are nearly 7,000 such diseases according to NIH. They tend to be serious and/or lifelong, and approximately two-thirds of those affected are children.
We invite you to join us in cosponsoring this resolution.
Introduced as HR55