PRINTER'S NO. 2492
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
498
Session of
2019
INTRODUCED BY KINSEY, MADDEN, BIZZARRO, SAINATO, BURNS,
LONGIETTI, HILL-EVANS, McCLINTON, ROTHMAN, SONNEY, KORTZ,
DiGIROLAMO, BOBACK, FREEMAN, MILLARD, THOMAS, HARKINS,
KOSIEROWSKI, KIM, READSHAW AND MURT, SEPTEMBER 18, 2019
REFERRED TO COMMITTEE ON HEALTH, SEPTEMBER 18, 2019
A RESOLUTION
Designating the month of October 2019 as "Rett Syndrome
Awareness Month" in Pennsylvania.
WHEREAS, Rett syndrome was first identified in the 1960s by
Austrian physician Dr. Andreas Rett; and
WHEREAS, Rett syndrome is a rare, genetic neurological
disorder occurring almost exclusively in girls; and
WHEREAS, It is estimated that Rett syndrome occurs in
approximately one in every 10,000 to 15,000 female births
worldwide and affects an estimated 15,000 girls and women in the
United States and 350,000 girls and women globally; and
WHEREAS, A child with Rett syndrome suffers from
developmental regression after 6 to 18 months of normal
development following birth, including severe impairments that
affect the child's ability to speak, walk, eat and breathe; and
WHEREAS, Rett syndrome may also be characterized by a child's
inability to perform motor functions, the inability to
communicate, seizures, scoliosis, sleep disorders, microcephaly,
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