PRINTER'S NO. 1822
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
342
Session of
2019
INTRODUCED BY RIGBY, KORTZ, HENNESSEY, BURNS, KINSEY, HILL-
EVANS, BIZZARRO, CALTAGIRONE, SCHMITT, LONGIETTI, DiGIROLAMO,
MEHAFFIE, MILLARD, BERNSTINE AND OBERLANDER, MAY 14, 2019
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
MAY 14, 2019
A RESOLUTION
Designating the month of May 2019 as "Williams Syndrome
Awareness Month" in Pennsylvania.
WHEREAS, Williams syndrome is a rare genetic condition that
is present at birth, affects as many as 30,000 individuals in
the United States and is characterized by medical and cognitive
problems, including cardiovascular disease, developmental delays
and learning disabilities; and
WHEREAS, The Williams Syndrome Association (WSA), founded in
1982, is a nonprofit organization and the most comprehensive
resource for people and families living with Williams syndrome,
as well as for doctors, researchers and educators; and
WHEREAS, WSA has improved the quality of life and futures of
those affected by Williams syndrome through its various efforts,
including raising public awareness, funding critical new
research and providing valuable information and support to
families; and
WHEREAS, To generate awareness about Williams syndrome and
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raise funding for critical WSA programs and initiatives, WSA has
organized the month of May as "Williams Syndrome Awareness
Month," which includes events all across the United States; and
WHEREAS, WSA and the families and friends of those with
Williams syndrome should be commended for their hard work,
compassion and courage as they educate the country about this
rare disorder; therefore be it
RESOLVED, That the House of Representatives designate the
month of May 2019 as "Williams Syndrome Awareness Month" in
Pennsylvania.
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