PRINTER'S NO. 1890
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No.
397
Session of
2018
INTRODUCED BY SCHWANK, LANGERHOLC, FONTANA, DINNIMAN, FOLMER,
COSTA, BROWNE, BLAKE, SABATINA, HUGHES, AUMENT, BREWSTER,
VOGEL, RAFFERTY, VULAKOVICH, STREET, MENSCH, SCAVELLO AND
BAKER, JUNE 18, 2018
INTRODUCED AND ADOPTED, JUNE 18, 2018
A RESOLUTION
Designating June 30, 2018, as "Arthrogryposis Awareness Day" in
Pennsylvania.
WHEREAS, Arthrogryposis Multiplex Congenita (AMC) is a
prenatally developing condition, caused by various conditions
and syndromes, in which a baby is born with at least three
joints in two different areas of the body that are highly or
permanently immobilized; and
WHEREAS, AMC presents as either a limited or a fixed range of
motion in the arm and leg joints, inward rotation of the
shoulders, abnormal extension of the elbows, bending of wrists
and fingers and in dislocated hips and inwardly bent heels and
feet (clubfoot); and
WHEREAS, Both the number of and particular joints affected
differ from person to person; and
WHEREAS, AMC occurs in about 1 in 3,000 births, with about
400 distinctly identified types; and
WHEREAS, The most common form of AMC, Amyoplasia, occurs in
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some 43% of cases and most often affects both upper and lower
extremities, including the hands, wrists, elbows, shoulders,
feet and knees; and
WHEREAS, AMC is not curable, but is treatable, with the goal
to allow the individuals as much independence in their daily
lives as possible; and
WHEREAS, Physical, occupational, speech and other therapies,
stretching and surgical interventions can help improve
independence level and the quality of life; and
WHEREAS, Although severe cases of AMC can lead to shorter
lives, the majority of individuals with AMC have normal
lifespans; therefore be it
RESOLVED, That the Senate designate June 30, 2018, as
"Arthrogryposis Awareness Day" in Pennsylvania; and be it
further
RESOLVED, That a copy of this resolution be transmitted to
Ms. Tanya Fierro, 2043 Shartlesville Road, Mohrsville, PA 19541.
20180SR0397PN1890 - 2 -
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