PRINTER'S NO. 1583
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
294
Session of
2017
INTRODUCED BY TOEPEL, LONGIETTI, READSHAW, BAKER, BIZZARRO,
V. BROWN, CALTAGIRONE, CORBIN, CORR, DiGIROLAMO, DRISCOLL,
DUSH, HELM, PHILLIPS-HILL, KINSEY, MACKENZIE, MARSICO, MURT,
NEILSON, O'BRIEN, PICKETT, QUIGLEY, RYAN, SCHLOSSBERG,
SONNEY, TOOHIL, WARD AND WARREN, APRIL 27, 2017
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
APRIL 27, 2017
A RESOLUTION
Recognizing May 24, 2017, as "Rare Disease Day" in Pennsylvania.
WHEREAS, Nearly 1 in 10 individuals living in this
Commonwealth has a rare disease; and
WHEREAS, According to the National Institutes of Health,
nearly 30 million Americans have rare diseases; and
WHEREAS, A disease is considered rare if it affects fewer
than 200,000 Americans; and
WHEREAS, There are nearly 7,000 rare diseases; and
WHEREAS, Rare diseases tend to be lifelong, but children
comprise approximately two-thirds of affected individuals; and
WHEREAS, "Rare Disease Day" is observed nationwide by
millions of people across the country and by the National
Organization for Rare Disorders to promote special awareness of
rare diseases; and
WHEREAS, Special events and activities are planned in
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schools, hospitals, universities and medical schools, including
the sharing of stories by individuals affected by a rare
disease; therefore be it
RESOLVED, That the House of Representatives recognize May 24,
2017, as "Rare Disease Day" in Pennsylvania to show residents of
this Commonwealth living with a rare disease and their family
members that they are not alone.
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