PRINTER'S NO. 728
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
115
Session of
2017
INTRODUCED BY MURT, BAKER, BIZZARRO, V. BROWN, CALTAGIRONE,
D. COSTA, DiGIROLAMO, DUSH, LONGIETTI, MILLARD, NEILSON,
READSHAW, SONNEY AND WARD, MARCH 3, 2017
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
MARCH 3, 2017
A RESOLUTION
Designating May 2, 2017, as "Nonketotic Hyperglycinemia
Awareness Day" in Pennsylvania.
WHEREAS, Nonketotic hyperglycinemia (NKH), also known as
glycine encephalopathy, is a severe and rare disorder resulting
from the inability to break down glycine, a neurotransmitter;
and
WHEREAS, A buildup of glycine in the blood and spinal fluid
affects nervous tissues, including the brain, causing seizures,
breathing and feeding difficulties, muscle limpness and
lethargy; and
WHEREAS, NKH usually becomes apparent after birth; and
WHEREAS, Many babies with NKH do not survive infancy; and
WHEREAS, NKH affects 1 out of every 60,000 births; and
WHEREAS, Fewer than 500 children worldwide are living with
NKH; and
WHEREAS, There is currently no cure for NKH; and
WHEREAS, Very few treatment options are available; and
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
WHEREAS, It is of vital importance to raise awareness of this
disease; therefore be it
RESOLVED, That the House of Representatives designate May 2,
2017, as "Nonketotic Hyperglycinemia Awareness Day" in
Pennsylvania; and be it further
RESOLVED, That the House of Representatives recognize the
importance of raising awareness of NKH in order to improve the
lives of those affected by it.
20170HR0115PN0728 - 2 -
1
2
3
4
5
6
7
8