PRINTER'S NO. 3221
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
822
Session of
2015
INTRODUCED BY MURT, BAKER, BIZZARRO, BOBACK, CALTAGIRONE, COHEN,
D. COSTA, DiGIROLAMO, DONATUCCI, DUSH, FARINA, KINSEY,
KIRKLAND, LONGIETTI, MAHONEY, MILLARD, MILNE, NEILSON,
READSHAW, ROSS, ROZZI, SONNEY, TOOHIL, WARD, WATSON, WHEELAND
AND YOUNGBLOOD, APRIL 22, 2016
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
APRIL 22, 2016
A RESOLUTION
Designating May 2, 2016, as "Nonketotic Hyperglycinemia
Awareness Day" in Pennsylvania.
WHEREAS, Nonketotic hyperglycinemia (NKH), also known as
glycine encephalopathy, is a severe and rare disorder resulting
from the inability to break down glycine, a neurotransmitter,
which leads to a buildup of glycine in the blood and spinal
fluid affecting nervous tissues, including the brain, causing
seizures, breathing and feeding difficulties, muscle limpness
and lethargy; and
WHEREAS, NKH usually becomes apparent after birth and many
babies with the disorder do not survive infancy; and
WHEREAS, NKH affects 1 out of every 60,000 births and there
are fewer than 500 children worldwide living with NKH; and
WHEREAS, There is currently no cure for NKH and there are
very few treatment options available; and
WHEREAS, It is of vital importance to raise awareness of this
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disease; therefore be it
RESOLVED, That the House of Representatives designate May 2,
2016, as "Nonketotic Hyperglycinemia Awareness Day" in
Pennsylvania; and be it further
RESOLVED, That the House of Representatives recognize the
importance of raising awareness of nonketotic hyperglycinemia in
order to improve the lives of those affected by it.
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