PRINTER'S NO. 1970
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
415
Session of
2015
INTRODUCED BY TOOHIL, BAKER, BISHOP, COHEN, D. COSTA,
DiGIROLAMO, DONATUCCI, FARINA, GOODMAN, HENNESSEY, JOZWIAK,
KAVULICH, KINSEY, KIRKLAND, LONGIETTI, MAHONEY, MAJOR,
MARSICO, MILLARD, MULLERY, MURT, D. PARKER, PICKETT,
READSHAW, ROSS, THOMAS, VEREB AND WHEELAND, JUNE 28, 2015
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
JUNE 28, 2015
A RESOLUTION
Designating the month of June 2015 as "Cockayne Syndrome
Awareness Month" in Pennsylvania and commending the work of
the Share and Care Cockayne Syndrome Network for raising
awareness of this disease.
WHEREAS, Cockayne Syndrome (CS) is a rare genetic disorder
affecting a small number of children worldwide, but its impact
on involved families is significant emotionally and
economically; and
WHEREAS, Edward Alfred Cockayne (1880-1956), after whom this
disease is named, was a London physician who concentrated
particularly on hereditary diseases of children; and
WHEREAS, CS is inherited in an autosomal recessive pattern;
therefore, in order for a child to be affected by CS, he or she
must inherit a mutation in the same CS gene from both parents;
and
WHEREAS, While parents, who are carriers of a single CS gene
mutation, remain healthy after the birth of a child with CS,
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