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        PRIOR PRINTER'S NOS. 1986, 2036               PRINTER'S NO. 2116

THE GENERAL ASSEMBLY OF PENNSYLVANIA


HOUSE BILL

No. 1579 Session of 2003


        INTRODUCED BY SAMUELSON, HESS, PISTELLA, WATSON, PALLONE,
           GRUCELA, SATHER, YUDICHAK, MELIO, FREEMAN, SCRIMENTI, HABAY,
           EACHUS, B. SMITH AND GINGRICH, JUNE 10, 2003

        AS AMENDED ON THIRD CONSIDERATION, HOUSE OF REPRESENTATIVES,
           JUNE 18, 2003

                                     AN ACT

     1  Relating to long-term care facility residents' rights; and
     2     providing for requirements for admission, care, transfer,
     3     discharge, funds and privacy of long-term care facility
     4     residents and for remedies.

     5     The General Assembly finds and declares as follows:
     6         (1)  Long-term care facilities are a critical part of
     7     this Commonwealth's long-term care services system. It is the
     8     intent of the General Assembly that individuals who reside in
     9     long-term care facilities receive appropriate services, be
    10     treated with courtesy and continue to enjoy their basic civil
    11     and legal rights.
    12         (2)  It is further the intent of the General Assembly
    13     that long-term care facility residents have the opportunity
    14     to exercise reasonable control over life decisions. The
    15     General Assembly finds that choice, participation, privacy
    16     and the opportunity to engage in religious, political, civic,
    17     recreational and other social activities foster a sense of
    18     self-worth and enhance the quality of life for long-term care

     1     residents.
     2         (3)  The public interest would be best served by
     3     providing the same basic resident rights in all long-term
     4     care settings. Residents in nursing facilities are guaranteed
     5     certain rights by Federal law and regulation under section
     6     1919 of the Social Security Act (49 Stat. 620, 42 U.S.C. §
     7     1396r) and 42 CFR Pt. 483 (relating to requirements for
     8     states and long-term care facilities). It is the intent of
     9     the General Assembly to extend those basic rights to
    10     residents in personal care homes, boarding homes and adult
    11     day-care facilities.
    12         (4)  It is further the intent of the General Assembly
    13     that a facility should care for its residents in a manner and
    14     in an environment that promotes maintenance or enhancement of
    15     each resident's quality of life. A resident should have a
    16     safe, clean, comfortable and homelike environment allowing
    17     the resident to use his or her personal belongings to the
    18     extent possible. The rights set forth in this act are the
    19     minimal rights guaranteed to all residents of long-term care
    20     facilities and are not intended to diminish rights set forth
    21     in Federal or State law that may contain additional rights.
    22                         TABLE OF CONTENTS
    23  Section 1.  Short title.
    24  Section 2.  Definitions.
    25  Section 3.  Exercise of rights.
    26  Section 4.  Rights and quality of life.
    27  Section 5.  Rights and services upon admission.
    28  Section 6.  Admissions, disclosures and contracts.
    29  Section 7.  Notification of changes in resident's condition.
    30  Section 8.  Facility service capability, transfer and discharge.
    20030H1579B2116                  - 2 -     

     1  Section 9.  Protection of residents' funds.
     2  Section 10.  Privacy of records.
     3  Section 11.  Grievances.
     4  Section 12.  Remedies.
     5  Section 13.  Examination of inspection results; contact with
     6                 advocates.
     7  Section 14.  Privacy in communications.
     8  Section 15.  Access and visitation.
     9  Section 16.  Personal property.
    10  Section 17.  Restraints.
    11  Section 18.  Abuse, punishment and seclusion.
    12  Section 19.  Waiver of liability and residents' rights limited.
    13  Section 20.  Conflict with Federal requirements.
    14  Section 50.  Effective date.
    15     The General Assembly of the Commonwealth of Pennsylvania
    16  hereby enacts as follows:
    17  Section 1.  Short title.
    18     This act shall be known and may be cited as the Long-Term
    19  Care Residents' Rights Act.
    20  Section 2.  Definitions.
    21     The following words and phrases when used in this act shall
    22  have the meanings given to them in this section unless the
    23  context clearly indicates otherwise:
    24     "Chemical restraint."  A psychopharmacological drug that is
    25  used for discipline or convenience and not required to treat a
    26  resident's medical symptoms.
    27     "Facility."  The term may include any of the following:
    28         (1)  A long-term care nursing facility as defined in
    29     section 802.1 of the act of July 19, 1979 (P.L.130, No.48),
    30     known as the Health Care Facilities Act.
    20030H1579B2116                  - 3 -     

     1         (2)  A personal care home as defined in section 1001 of
     2     the act of June 13, 1967 (P.L.31, No.21), known as the Public
     3     Welfare Code.
     4     "Fundamental alteration."  A change or modification to the
     5  program or building that the facility can demonstrate would
     6  cause it to suffer an undue hardship with regard to cost, nature
     7  and scope.
     8     "Physical restraint."  A manual method, obstacle or physical
     9  or mechanical device, material or equipment attached or adjacent
    10  to the resident's body that restricts freedom of movement or
    11  access to his or her body, is used for discipline or convenience
    12  and not required to treat a resident's medical symptoms.
    13     "Reasonable accommodation."  In relation to a facility and
    14  the needs of its prospective or current residents, the term has
    15  the meaning given under the Americans with Disabilities Act of
    16  1990 (Public Law 101-336, 104 Stat. 327) and other applicable
    17  Federal or State antidiscrimination laws and regulations.
    18     "Resident."  A person receiving services in a facility. The
    19  term also includes that resident's attorney-in-fact, guardian or
    20  other legal representative acting within the scope of his or her
    21  authority.
    22     "Transfer and discharge."  Includes movement of a resident to
    23  a bed outside of the facility whether that bed is in the same
    24  physical plant or not. Transfer and discharge do not refer to
    25  movement of a resident to a bed within the same facility.
    26  Section 3.  Exercise of rights.
    27     A resident has a right to a dignified existence, self-
    28  determination and communication with and access to persons and
    29  services inside and outside of the facility. A facility must
    30  protect and promote the rights of each resident and assist the
    20030H1579B2116                  - 4 -     

     1  resident as follows:
     2         (1)  The resident has the right to exercise his or her
     3     rights as a resident of the facility and as a citizen of the
     4     United States and a resident of this Commonwealth.
     5         (2)  The resident has the right to be free of
     6     interference, coercion, discrimination and reprisal from the
     7     facility, its staff and its residents in exercising his or
     8     her rights.
     9         (3)  In the case of a resident that is judged incompetent
    10     by a court of competent jurisdiction, the rights of the
    11     resident are exercised by the person appointed to act on the
    12     resident's behalf.
    13         (4)  In the case of a resident who has not been adjudged
    14     incompetent by a court of competent jurisdiction, a
    15     representative may exercise the resident's rights to the
    16     extent provided by law.
    17  Section 4.  Rights and quality of life.
    18     (a)  General rule.--A facility must promote care for
    19  residents in a manner and in an environment that maintains or
    20  enhances each resident's dignity and respect in full recognition
    21  of his or her individuality.
    22     (b)  Quality of life.--Within reasonable facility rules
    23  designed to protect the rights and quality of life of residents,
    24  a resident has the right to:
    25         (1)  Choose activities, schedules and health care service
    26     and providers consistent with his or her interests,
    27     assessments and plans of care.
    28         (2)  Interact with members of the community both inside
    29     and outside of the facility.
    30         (3)  Make choices about aspects of his or her life in the
    20030H1579B2116                  - 5 -     

     1     facility which are significant to the resident.
     2         (4)  Wear his or her own clothing and determine his or
     3     her own dress, hair style or other personal effects according
     4     to individual preference.
     5         (5)  Unless adjudged incompetent or otherwise found to be
     6     incapacitated, participate in planning care and treatment or
     7     changes in care and treatment.
     8         (6)  Unless adjudged incompetent or otherwise found to be
     9     incapacitated, to direct his or her own service plan and
    10     changes in the service plan and to refuse any particular
    11     service so long as such refusal is documented in the record
    12     of the resident.
    13     (c)  Resident groups.--A resident has the right to organize
    14  and participate in resident groups in the facility. The
    15  following shall apply:
    16         (1)  If a resident group is organized, the facility must
    17     provide a meeting room if one exists.
    18         (2)  Staff or visitors may attend meetings at the
    19     resident group's invitation.
    20         (3)  When a resident or family group exists, a facility
    21     must listen to the views and act upon the grievances and
    22     recommendations of residents and families concerning proposed
    23     policy and operational decisions affecting resident care and
    24     life in the facility.
    25     (d)  Services performed by resident.--A resident has the
    26  right to refuse to perform services for the facility except as
    27  voluntarily agreed by the resident and the facility in the
    28  resident's service plan.
    29     (e)  Participation in certain activities.--A resident has the
    30  right to participate in social, religious and community
    20030H1579B2116                  - 6 -     

     1  activities that do not interfere with the rights of other
     2  residents in the facility.
     3     (f)  Accommodation; room or roommate and ability of consumer
     4  to arrange for supplemental services to permit aging in place.--
     5  A resident has the right to:
     6         (1)  Reside and receive care and services in the facility
     7     365 days a year with no planned or intermittent
     8     interruptions. Nothing in this paragraph shall preclude
     9     facilities from adjusting their staffing levels in accordance
    10     with a resident being absent from a facility for holidays or
    11     vacations.
    12         (2)  Reside and receive services in the facility with
    13     reasonable accommodation of individual needs and preferences,
    14     including the ability of the resident to arrange for
    15     supplemental services to permit aging in place, except when
    16     the health or safety of the individual or other residents
    17     would be endangered.
    18         (3)  Receive notice before the resident's room or
    19     roommate in the facility is changed.
    20     (g)  Spouses.--A resident has the right to share a double
    21  room with his or her spouse when married residents live in the
    22  same facility and both spouses consent to the arrangement.
    23     (h)  Public funding.--A resident has the right to apply for
    24  and receive, if determined eligible, available public funding
    25  for care and services at any time prior to or during residency.
    26  An applicant who is eligible for public funding may not be
    27  required to reside as a private pay resident for any duration of
    28  time as a condition of admission or residency.
    29  Section 5.  Rights and services upon admission.
    30     (a)  Notification.--A facility must inform the resident both
    20030H1579B2116                  - 7 -     

     1  orally and in writing in a language that the resident
     2  understands of his or her rights and all rules and regulations
     3  governing resident conduct and responsibilities during the stay
     4  in the facility. The notification must be made prior to or upon
     5  admission. Receipt of all the information under this section
     6  must be acknowledged in writing.
     7     (b)  Access to records.--A resident or his or her legal
     8  representative has the right:
     9         (1)  Upon an oral or written request, to access all
    10     records pertaining to himself or herself, including clinical
    11     records within 24 hours of the request.
    12         (2)  After receipt of his or her records for inspection,
    13     to purchase, at a cost not to exceed the community standard
    14     for photocopies, copies of the records or portions of them
    15     upon request and ten working days' advance notice to the
    16     facility.
    17     (c)  Admission.--A facility may only admit or retain
    18  individuals whose needs it can safely and appropriately serve in
    19  the facility with appropriate available staff and through the
    20  provision of reasonable accommodations required by Federal or
    21  State law. Except in cases of emergency, the facility may not
    22  admit an individual before obtaining a thorough assessment by an
    23  appropriate assessor as permitted by law. All applicants shall
    24  be informed of their right to an independent assessment by an
    25  appropriate assessor located at an area agency on aging or
    26  another site not affiliated with the facility. The assessment
    27  shall contain:
    28         (1)  A medical evaluation by the applicant's physician
    29     indicating the resident's health status and certifying the
    30     resident's level of care needs and appropriateness for the
    20030H1579B2116                  - 8 -     

     1     facility type.
     2         (2)  Relevant medical history including:
     3             (i)  Necessary and contraindicated medications.
     4             (ii)  Relevant diagnosis and conditions.
     5             (iii)  Allergies.
     6             (iv)  Significant known behaviors or symptoms that
     7         may cause concern or require special care.
     8             (v)  Dietary specifications.
     9             (vi)  Personal care needs as identified by the
    10         evaluation and assessment.
    11     (d)  Retention.--A facility shall retain and not transfer or
    12  discharge a resident unless:
    13         (1)  There is nonpayment of fees required under the
    14     contract, after reasonable good faith efforts to obtain
    15     payment, including, where appropriate, application for
    16     available public funding.
    17         (2)  The resident develops a condition of a nature and
    18     severity that the licensing department precludes by
    19     regulation from being served in that facility type.
    20         (3)  The resident's needs cannot be met by the facility,
    21     even with the resident bringing in supplemental services from
    22     an outside provider, without a fundamental alteration to the
    23     program or facility.
    24     (e)  Resident preferences.--A facility shall within five days
    25  after admission of the resident complete a list of the following
    26  preferences that shall become part of the resident's medical
    27  record:
    28         (1)  Preferences as to daily social and visitation
    29     activities.
    30         (2)  Service preferences.
    20030H1579B2116                  - 9 -     

     1         (3)  Preferences regarding other issues important to the
     2     resident.
     3     (f)  Accommodation.--Resident preferences shall be reasonably
     4  accommodated by the facility.
     5     (g)  Additional notifications.--A facility must provide each
     6  resident, in writing in a language the resident or his or her
     7  representative easily understands, before admission and at least
     8  once every 18 months thereafter or if any of the following are
     9  changed:
    10         (1)  A copy of the facility's admission and discharge
    11     policies.
    12         (2)  A description of the facility internal grievance
    13     process, including the names, office location and telephone
    14     number of the facility personnel responsible for hearing and
    15     resolving complaints. Each licensing entity shall determine
    16     uniform standards for facilities to follow in resolving
    17     internal grievances.
    18         (3)  Services, items and activities customarily available
    19     in the facility or arranged for by the facility as permitted
    20     by the facility's license.
    21         (4)  Advance directive information, including information
    22     on the right to have or not to have an advance directive.
    23         (5)  A list of charges for those services, items and
    24     activities, including charges for services, items and
    25     activities not covered by the facility's per diem rate or
    26     applicable public benefit programs.
    27         (6)  Changes in the availability or the charges for
    28     services, items or activities or of changes in the facility's
    29     rules. Except in emergencies, 30 days' advance notice must be
    30     given prior to the change.
    20030H1579B2116                 - 10 -     

     1         (7)  A description of the manner of protecting personal
     2     funds as provided in section 9.
     3         (8)  A written description of resident's rights that
     4     include:
     5             (i)  Telephone numbers of the local long-term care
     6         ombudsman program and the local area agency on aging.
     7             (ii)  A list of the names, addresses and telephone
     8         numbers of the appropriate State licensing departments.
     9         This same document shall include a statement that the
    10         resident may file a complaint with the appropriate
    11         departments or with the long-term care ombudsman
    12         concerning alleged resident abuse, neglect and
    13         misappropriation of resident property in the facility.
    14     (h)  Posting of information.--A facility shall also post all
    15  the information provided to a resident in subsection (g)(5) and
    16  (6) in a conspicuous location that is readily accessible. All
    17  posted information shall be presented to the residents in a form
    18  that is readable and easily understood.
    19  Section 6.  Admissions, disclosures and contracts.
    20     (a)  Disclosures required.--Prior to admission, a facility
    21  that requires an admission fee, deposit or a minimum stay fee,
    22  by or on behalf of a person seeking admission to the facility,
    23  shall provide a resident or his or her representative, full
    24  disclosure, in writing in a language the resident or his or her
    25  representative understands, a statement of the amount of any
    26  admission fees, deposits, prepaid charges or minimum stay fees.
    27  The facility shall also disclose to the person or his or her
    28  representative the facility's advance notice or transfer
    29  requirements, which shall comply with section 5, prior to
    30  admission. In addition, the facility shall also fully disclose
    20030H1579B2116                 - 11 -     

     1  in writing prior to admission what portion of the deposits,
     2  admission fees, prepaid charges, or minimum stay fees will be
     3  refunded to the resident or his or her representative if the
     4  resident leaves the facility. Receipt of the disclosures
     5  required under this subsection must be acknowledged in writing.
     6  If the facility does not provide these disclosures, the
     7  deposits, admission fees, prepaid charges or minimum stay fees
     8  may not be kept by the facility. If a resident dies or is
     9  hospitalized or is transferred to another facility for more
    10  appropriate care and does not return to the original facility,
    11  the facility shall refund any deposit or charges already paid
    12  less the facility's per diem rate for the days the resident
    13  actually resided or reserved or retained a bed in the facility,
    14  notwithstanding any minimum stay policy or discharge notice
    15  requirements, except that the facility may retain an additional
    16  amount to cover its reasonable, actual expenses incurred as a
    17  result of a private-pay resident's move, not to exceed five
    18  days' per diem charges, unless the resident has given advance
    19  notice in compliance with the admission agreement. A facility
    20  under this section is required to refund any and all refunds due
    21  the resident or his or her representative within 30 days from
    22  the resident's date of discharge from the facility. Nothing in
    23  this section applies to provisions in contracts negotiated
    24  between a facility and a certified health plan, health or
    25  disability insurer, health maintenance organization, managed
    26  care organization or similar entities.
    27     (b)  Admission contract.--Where the facility is required to
    28  have an admission contract by or on behalf of an individual
    29  seeking admission to the facility, the terms of the contract
    30  shall be consistent with the requirements of this section and
    20030H1579B2116                 - 12 -     

     1  other licensing requirements, and the terms of an admission
     2  contract by a facility shall be consistent with the requirements
     3  of this act.
     4  Section 7.  Notification of changes in resident's condition.
     5     (a)  Notifications.--
     6         (1)  A facility must immediately consult with the
     7     resident's physician and, if known, make reasonable efforts
     8     to notify the resident's legal representative or an
     9     interested family member when there is:
    10             (i)  An accident involving the resident that requires
    11         or has the potential for requiring physician
    12         intervention.
    13             (ii)  A significant change in the resident's
    14         physical, mental or psychosocial status such as
    15         deterioration in health, mental or psychosocial status as
    16         a result of a life-threatening condition or clinical
    17         complication.
    18         (2)  The facility must promptly notify the resident or
    19     the resident's representative and shall make reasonable
    20     efforts to notify an interested family member, if known, when
    21     there is a change in the resident's room or roommate
    22     assignment.
    23     (b)  Recordkeeping.--The facility must record and update the
    24  address and telephone number of a resident's representative or
    25  interested family member, upon receipt of notice.
    26  Section 8.  Facility service capability, transfer and discharge.
    27     (a)  Service capability.--A facility shall fully disclose to
    28  potential residents or their legal representative the service
    29  capabilities of the facility prior to admission to the facility.
    30  If the care needs of an applicant are in excess of the
    20030H1579B2116                 - 13 -     

     1  facility's service capabilities, the respective licensing
     2  department shall identify other care settings or residential
     3  care options consistent with Federal law, notify the applicant
     4  and legal representative of the facility's determination and
     5  other care settings identified, refer the applicant and legal
     6  representative to the county agency that can assist in placement
     7  in other care settings.
     8     (b)  Facility obligations.--A facility must permit each
     9  resident to remain in the facility and not transfer or discharge
    10  a resident from the facility unless:
    11         (1)  The transfer or discharge is necessary for the
    12     resident's welfare and the resident's needs cannot with
    13     reasonable accommodation be met in the facility. Reasonable
    14     accommodation shall include the allowance of obtaining
    15     supplemental services from a provider outside of the long-
    16     term care facility and shall preclude fundamental alterations
    17     in the facility's basic program or building.
    18         (2)  The safety of other individuals in the facility is
    19     endangered.
    20         (3)  The health of individuals in the facility would
    21     otherwise be endangered.
    22         (4)  The facility has made a good faith effort to obtain
    23     payment of contractual fees and the resident has failed to
    24     make the required payment for his or her stay, provided that
    25     the failure to make payment is not based on the resident's
    26     failure to receive payment from a public benefit program.
    27         (5)  The facility ceases to operate.
    28     (c)  Transfer or discharge.--Before a long-term care facility
    29  transfers or discharges a resident, a facility must:
    30         (1)  First attempt through reasonable accommodations to
    20030H1579B2116                 - 14 -     

     1     avoid the transfer or discharge, unless agreed to by the
     2     resident.
     3         (2)  Notify the resident and the legal representative of
     4     the resident and make a reasonable effort to notify, if
     5     known, an interested family member of the transfer or
     6     discharge and the reasons for the move in writing and in a
     7     language and manner they understand.
     8         (3)  Record the reasons in the resident's record.
     9         (4)  Include in the notice the items described in
    10     subsection (d)(3).
    11     (d)  Notice procedure.--
    12         (1)  Except as provided under paragraph (2), the notice
    13     of transfer or discharge required under subsection (c)(2)
    14     must be made by the facility at least 30 days before the
    15     resident is transferred or discharged.
    16         (2)  Notice may be made as soon as practicable before
    17     transfer or discharge when:
    18             (i)  The safety of individuals in the facility would
    19         be endangered.
    20             (ii)  The health of individuals in the facility would
    21         be endangered.
    22             (iii)  An immediate transfer or discharge is required
    23         by the resident's urgent medical needs.
    24             (iv)  A resident has not resided in the facility for
    25         30 days.
    26         (3)  The written notice specified in subsection (c)(2)
    27     must include the following:
    28             (i)  The reason for transfer or discharge.
    29             (ii)  The effective date of transfer or discharge.
    30             (iii)  The location to which the resident is
    20030H1579B2116                 - 15 -     

     1         transferred or discharged.
     2             (iv)  The name, address and telephone number of the
     3         State and local long-term care ombudsman.
     4             (v)  For residents with developmental disabilities,
     5         the mailing address and telephone number of the agency
     6         responsible for the protection and advocacy of
     7         developmentally disabled individuals.
     8             (vi)  For residents who are mentally ill, the mailing
     9         address and telephone number of the agency responsible
    10         for the protection and advocacy of mentally ill
    11         individuals.
    12     (e)  Preparation for transfer or discharge.--A facility must
    13  provide sufficient preparation and orientation to residents to
    14  ensure safe and orderly transfer or discharge from the facility.
    15     (f)  Readmission.--A resident discharged in violation of this
    16  section has the right to be readmitted immediately upon the
    17  first availability of a gender-appropriate bed in the facility.
    18     (g)  Discharge planning.--A facility must insure that a
    19  transfer or discharge is safe, orderly and to a setting capable
    20  of meeting the resident's needs. The following shall apply:
    21         (1)  A facility may not discharge a resident without
    22     written notice pursuant to this act being provided to the
    23     resident and legal representative indicating the reason for
    24     the proposed transfer or discharge.
    25         (2)  A facility may not discharge a resident either with
    26     or without consent unless and until a discharge plan has been
    27     completed and signed by the resident or his legal
    28     representative that lists:
    29             (i)  The name and address of the facility or other
    30         residential setting to which the resident is being
    20030H1579B2116                 - 16 -     

     1         transferred.
     2             (ii)  A list of medical or care needs that the
     3         resident will need until the transfer is complete and how
     4         those needs will be met by the facility.
     5             (iii)  A list of the medical and care needs that the
     6         resident will need after the transfer is complete and how
     7         they will be met.
     8             (iv)  The reason the facility is discharging or
     9         transferring the resident.
    10             (v)  Any other special needs or preferences that the
    11         resident has provided to the discharging facility.
    12         (3)  A copy of the discharge plan shall be forwarded to
    13     the facility or other service provider to which the resident
    14     is transferred. A copy of the medical or care needs of the
    15     resident shall be provided to the individual or entity that
    16     is transferring the individual.
    17  Section 9.  Protection of residents' funds.
    18     (a)  General rule.--A resident has the right to manage his or
    19  her financial affairs. A facility may not require residents to
    20  deposit their personal funds with the facility nor may a
    21  facility require a resident to make the facility the
    22  representative payee as a condition of admission or retention.
    23     (b)  Management of residents' funds.--Upon written
    24  authorization of a resident, if a facility agrees to manage the
    25  resident's personal funds, the facility must hold, safeguard,
    26  manage and account for the personal funds of the resident
    27  deposited with the facility as follows:
    28         (1)  The facility must deposit a resident's personal
    29     funds in excess of $50 in an interest-bearing account that is
    30     separate from any of the facility's operating accounts and
    20030H1579B2116                 - 17 -     

     1     that credits all interest earned on a resident's funds to
     2     that account. In pooled accounts, there must be a separate
     3     accounting for each resident's share.
     4         (2)  The facility must maintain a resident's personal
     5     funds that do not exceed $50 in a noninterest-bearing
     6     account, interest-bearing account or petty cash fund.
     7         (3)  The facility must establish and maintain a system
     8     that assures a full and complete and separate accounting of
     9     each resident's personal funds entrusted to the facility on
    10     the resident's behalf. The system must preclude any
    11     commingling of resident funds with facility funds or with the
    12     funds of any person other than another resident. The
    13     administrator must insure that residents have prompt access
    14     to their funds. The individual financial record must be
    15     summarized in monthly statements provided to and otherwise
    16     available on request to the resident or his or her legal
    17     representative.
    18         (4)  Upon the death of a resident with personal funds
    19     deposited with the facility, the facility must convey within
    20     30 days an estimated accounting of the resident's funds
    21     deposited at the facility, an estimate of the final charges
    22     based on prior monthly charges and other available
    23     information., and the amount of funds on deposit that exceed   <--
    24     the estimated final charges to the individual or probate
    25     jurisdiction administering the resident's estate. Within 60
    26     days of the death of a resident with personal funds deposited
    27     with the facility, the facility must convey a final
    28     accounting and disperse any remaining resident's funds to the
    29     individual or probate jurisdiction administering the
    30     resident's estate.
    20030H1579B2116                 - 18 -     

     1         (5)  In the case of a resident who received long-term
     2     care services paid for by the Commonwealth, the facility
     3     shall notify the Department of Public Welfare of the death
     4     and the name of the person known to be executor of the
     5     estate.
     6     (C)  PAYMENT REFUNDS.--                                        <--
     7         (1)  REFUNDS FROM A RESIDENT'S PERSONAL FUNDS SHALL BE
     8     REIMBURSED IN THE FOLLOWING MANNER:
     9             (I)  A PERSONAL CARE HOME AS DEFINED IN SECTION 1001
    10         OF THE ACT OF JUNE 13, 1967 (P.L.31, NO.21), KNOWN AS THE
    11         PUBLIC WELFARE CODE, SHALL, WITHIN 30 DAYS FROM THE DATE
    12         THAT THE LIVING UNIT IS CLEARED OF THE RESIDENT'S
    13         PERSONAL PROPERTY AS A RESULT OF THE RESIDENT'S DEATH,
    14         PAY THE PERSONAL REPRESENTATIVE OR GUARDIAN OF THE
    15         RESIDENT THE AMOUNT OF THE DIFFERENCE BETWEEN ANY
    16         PERSONAL FUNDS AND/OR PAYMENTS MADE, INCLUDING ANY UNPAID
    17         INTEREST THEREON, AND THE COST OF CARE ACTUALLY PROVIDED
    18         TO THE RESIDENT.
    19             (II)  A LONG-TERM CARE NURSING FACILITY AS DEFINED IN
    20         SECTION 802.1 OF THE ACT OF JULY 19, 1979 (P.L.130,
    21         NO.48), KNOWN AS THE HEALTH CARE FACILITIES ACT, SHALL,
    22         WITHIN 60 DAYS FROM THE DATE OF THE DEATH OF THE
    23         RESIDENT, PAY THE PERSONAL REPRESENTATIVE OR GUARDIAN OF
    24         THE RESIDENT THE AMOUNT OF THE DIFFERENCE BETWEEN ANY
    25         PERSONAL FUNDS AND/OR PAYMENTS MADE, INCLUDING ANY UNPAID
    26         INTEREST THEREON, AND THE COST OF CARE ACTUALLY PROVIDED
    27         TO THE RESIDENT.
    28         (2)  PAYMENTS MADE FOR ELDER CARE SERVICES SHALL BE
    29     REIMBURSED IN ACCORDANCE WITH THE ACT OF DECEMBER 9, 2002
    30     (P.L.1388, NO.171), KNOWN AS THE ELDER CARE PAYMENT
    20030H1579B2116                 - 19 -     

     1     RESTITUTION ACT.
     2         (3)  ANY CLAUSE WITHIN A CONTRACTUAL AGREEMENT WHICH
     3     IMPOSES ELDER CARE COSTS AND WHICH IS ENTERED INTO BETWEEN
     4     THE RESIDENT AND THE FACILITY ON OR AFTER THE EFFECTIVE DATE
     5     OF THIS ACT THAT DOES NOT MEET THE STANDARDS ESTABLISHED BY
     6     THIS ACT SHALL BE NULL AND VOID.
     7         (4)  IF THE FACILITY FAILS TO PAY THE PERSONAL
     8     REPRESENTATIVE OR GUARDIAN AS REQUIRED BY THIS SECTION, THE
     9     FACILITY SHALL BE LIABLE TO THE PERSONAL REPRESENTATIVE OR
    10     GUARDIAN FOR TWICE THAT PORTION OF THE PAYMENT, INCLUDING ANY
    11     UNPAID INTEREST THEREON, THAT EXCEEDS THE COST OF THE CARE
    12     ACTUALLY PROVIDED, AS DETERMINED BY A COURT HAVING
    13     JURISDICTION IN CIVIL ACTIONS AT LAW.
    14         (5)  THIS SUBSECTION SHALL NOT APPLY IF THE FACILITY CAN
    15     DEMONSTRATE THAT, AFTER GOOD FAITH EFFORTS, IT WAS UNABLE TO
    16     CONTACT THE PERSONAL REPRESENTATIVE OR GUARDIAN AS REQUIRED
    17     BY THIS ACT.
    18  Section 10.  Privacy of records.
    19     A resident has the right to personal privacy and
    20  confidentiality of his or her personal and clinical records.
    21  Personal privacy includes accommodations, medical treatment,
    22  written and telephone communications, personal care, visits and
    23  meetings of family and resident groups. This does not require
    24  the facility to provide a private room for each resident.
    25  However, a resident may not be prohibited by the facility from
    26  meeting with guests in his or her bedroom if no roommates
    27  object. The resident may approve or refuse the release of
    28  personal and clinical records to an individual outside the
    29  facility unless otherwise provided by law.
    30  Section 11.  Grievances.
    20030H1579B2116                 - 20 -     

     1     A resident has the right to:
     2         (1)  Voice grievances. Grievances include those with
     3     respect to treatment that has been furnished as well as that
     4     which has not been furnished.
     5         (2)  Prompt efforts by the facility to resolve grievances
     6     the resident may have, including those with respect to the
     7     behavior of other residents.
     8         (3)  Assurance that the focus is on his or her well-
     9     being. It is essential that the focus in grievance resolution
    10     remain on insuring the health, safety and well-being of the
    11     residents in long-term care facilities in this Commonwealth.
    12         (4)  Protection against retaliating action. The facility
    13     shall not take any action against a resident in retaliation,
    14     including, but not limited to, threatening to transfer or
    15     discharge, transferring or discharging, threatening to
    16     infringe or infringing on any of the consumer rights
    17     articulated in this act, for the resident's voicing of
    18     grievances.
    19  Section 12.  Remedies.
    20     The General Assembly intends that facility residents, their
    21  family members or guardians, long-term care ombudsman,
    22  protection and advocacy personnel identified in this act and
    23  others who may seek to assist facility residents use the least
    24  formal means available to satisfactorily resolve disputes that
    25  may arise regarding the rights conferred by this act. Wherever
    26  feasible, direct discussion with facility personnel or
    27  administrators should be employed. Failing that, and where
    28  feasible, recourse may be sought through Federal or State long-
    29  term care or nursing home licensing or other regulatory
    30  authorities. However, the procedures suggested in this section
    20030H1579B2116                 - 21 -     

     1  are cumulative and shall not restrict an agency or person from
     2  seeking a remedy provided by law or from obtaining additional
     3  relief based on the same facts, including any remedy available
     4  to an individual at common law.
     5  Section 13.  Examination of inspection results; contact with
     6                 advocates.
     7     A resident has the right to:
     8         (1)  Examine the results of the most recent inspection of
     9     the facility conducted by Federal or State inspectors and
    10     plans of correction in effect with respect to the facility. A
    11     notice that the results are available must be publicly posted
    12     with the facility's license, and the results must be made
    13     available for examination by the facility in a conspicuous
    14     place readily accessible to residents.
    15         (2)  Receive information from departments, agencies or
    16     programs acting as resident advocates and be afforded the
    17     opportunity to contact these entities.
    18  Section 14.  Privacy in communications.
    19     A resident has the right to privacy in communications,
    20  including the right to:
    21         (1)  Send and promptly receive mail that is unopened.
    22         (2)  Have access to stationery, postage and writing
    23     implements at the resident's own expense.
    24         (3)  Have reasonable access to the use of a telephone
    25     where calls can be made without being overheard.
    26  Section 15.  Access and visitation.
    27     (a)  Access.--A resident has the right and a facility must
    28  not interfere with access to any resident by the following:
    29         (1)  Any representative of the Commonwealth.
    30         (2)  The resident's individual physician.
    20030H1579B2116                 - 22 -     

     1         (3)  The long-term care ombudsman.
     2         (4)  A department responsible for the protection and
     3     advocacy for mentally ill individuals.
     4         (5)  Subject to reasonable restrictions to protect the
     5     rights of others and to the resident's right to deny or
     6     withdraw consent at any time, immediate family or other
     7     relatives of the resident and others who are visiting with
     8     the consent of the resident.
     9         (6)  An agency responsible for the protection and
    10     advocacy for individuals with disabilities.
    11     (b)  Access to services.--A facility must provide reasonable
    12  access to a resident by his or her representative or an entity
    13  or individual that provides health, social, legal or other
    14  services to the resident, subject to the resident's right to
    15  deny or withdraw consent at any time.
    16     (c)  Access to records.--A facility must allow
    17  representatives of the long-term care ombudsman to examine a
    18  resident's clinical records with the permission of the resident
    19  or the resident's legal representative and consistent with
    20  Federal and State law.
    21  Section 16.  Personal property.
    22     (a)  Personal property generally.--A resident has the right
    23  to retain and use personal possessions, including some
    24  furnishings, and appropriate clothing, as space permits, unless
    25  to do so would infringe upon the rights or health and safety of
    26  other residents.
    27     (b)  Storage.--A facility shall, upon request, provide the
    28  resident with a lockable container or other lockable storage
    29  space for small items of personal property, unless the
    30  resident's individual room is lockable with a key issued to the
    20030H1579B2116                 - 23 -     

     1  resident.
     2  Section 17.  Restraints.
     3     A resident has the right to be free from physical restraint
     4  and chemical restraint. This section does not require or
     5  prohibit facility staff from reviewing the judgment of the
     6  resident's physician in prescribing psychopharmacologic
     7  medications.
     8  Section 18.  Abuse, punishment and seclusion.
     9     A resident has the right to be free from verbal, sexual,
    10  physical and mental abuse, neglect, financial exploitation,
    11  corporal punishment and involuntary seclusion.
    12  Section 19.  Waiver of liability and residents' rights limited.
    13     No facility shall request residents to sign waivers of
    14  potential liability for losses of personal property or injury or
    15  to sign waivers of residents' rights set forth in this act or in
    16  applicable licensing or certification laws.
    17  Section 20.  Conflict with Federal requirements.
    18     If any part of this act is found to be in conflict with
    19  Federal requirements that are a prescribed condition to the
    20  allocation of Federal funds to the Commonwealth, the conflicting
    21  part of this act is inoperative solely to the extent of the
    22  conflict and with respect to the agencies directly affected, and
    23  this finding does not affect the operation of the remainder of
    24  this act in its application to the agencies concerned. The rules
    25  under this act shall meet Federal requirements that are a
    26  necessary condition to the receipt of Federal funds by the
    27  Commonwealth.
    28  Section 50.  Effective date.
    29     This act shall take effect in 180 days.

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