PRINTER'S NO. 1846
No. 1578 Session of 1991
INTRODUCED BY EVANS, JUNE 5, 1991
REFERRED TO COMMITTEE ON APPROPRIATIONS, JUNE 5, 1991
AN ACT 1 Making an appropriation to the Trustees of Jefferson Medical 2 College and Hospital of Philadelphia for a comprehensive 3 program relating to Tay-Sachs disease. 4 The General Assembly of the Commonwealth of Pennsylvania 5 hereby enacts as follows: 6 Section 1. The sum of $58,000 is hereby appropriated to the 7 Trustees of Jefferson Medical College and Hospital, 8 Philadelphia, for the fiscal year July 1, 1991, to June 30, 9 1992, for a comprehensive program relating to persons with Tay- 10 Sachs disease. 11 Section 2. Payment to Jefferson Medical College and Hospital 12 on account of the appropriation relating to Tay-Sachs disease as 13 provided for in section 1 shall be made by the Secretary of 14 Health in equal quarterly payments and shall be conditioned upon 15 a program which shall include the detection of Tay-Sachs disease 16 in the community, counseling of individuals and families, 17 education of the public, coordination of research into the 18 treatment for Tay-Sachs disease and the expansion of genetic
1 diagnostic services and treatment of persons with the disease. 2 Section 3. Jefferson Medical College and Hospital shall 3 provide full, complete and accurate information as may be 4 required by the Department of Health or the Majority Chairman or 5 the Minority Chairman of the Appropriations Committee of the 6 Senate or the Majority Chairman or the Minority Chairman of the 7 Appropriations Committee of the House of Representatives. 8 Section 4. This act shall take effect July 1, 1991, or 9 immediately, whichever is later. E31L84RZ/19910H1578B1846 - 2 -