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                                                      PRINTER'S NO. 1753

THE GENERAL ASSEMBLY OF PENNSYLVANIA


HOUSE BILL

No. 1499 Session of 1989


        INTRODUCED BY PIEVSKY, MAY 22, 1989

        REFERRED TO COMMITTEE ON APPROPRIATIONS, MAY 22, 1989

                                     AN ACT

     1  Making an appropriation to the Trustees of Jefferson Medical
     2     College and Hospital of Philadelphia for a comprehensive
     3     program relating to Tay-Sachs disease.

     4     The General Assembly of the Commonwealth of Pennsylvania
     5  hereby enacts as follows:
     6     Section 1.  The sum of $58,000 is hereby appropriated to the
     7  Trustees of Jefferson Medical College and Hospital,
     8  Philadelphia, for the fiscal year July 1, 1989, to June 30,
     9  1990, for a comprehensive program relating to persons with Tay-
    10  Sachs disease.
    11     Section 2.  Payment to Jefferson Medical College and Hospital
    12  on account of the appropriation relating to Tay-Sachs disease as
    13  provided for in section 1 shall be made by the Secretary of
    14  Health in equal quarterly payments and shall be conditioned upon
    15  a program which shall include the detection of Tay-Sachs disease
    16  in the community, counseling of individuals and families,
    17  education of the public, coordination of research into the
    18  treatment for Tay-Sachs disease and the expansion of genetic

     1  diagnostic services and treatment of persons with the disease.
     2     Section 3.  Jefferson Medical College and Hospital shall
     3  provide such information as may be necessary to carry out the
     4  provisions of this act and in such form and manner as the
     5  Department of Health shall prescribe.
     6     Section 4.  This act shall take effect July 1, 1989, or
     7  immediately, whichever is later.
















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