PRINTER'S NO. 1208
No. 1051 Session of 1983
INTRODUCED BY PIEVSKY, MAY 24, 1983
REFERRED TO COMMITTEE ON APPROPRIATIONS, MAY 24, 1983
AN ACT
1 Making an appropriation to the Trustees of the Jefferson Medical
2 College and Hospital, Philadelphia, for a comprehensive
3 program relating to Tay-Sachs disease.
4 The General Assembly of the Commonwealth of Pennsylvania
5 hereby enacts as follows:
6 Section 1. The sum of $50,000 is hereby appropriated to the
7 Trustees of the Jefferson Medical College and Hospital,
8 Philadelphia, for the fiscal year July 1, 1983 to June 30, 1984,
9 for a comprehensive program relating to persons with Tay-Sachs
10 disease.
11 Section 2. Payment to the Jefferson Medical College and
12 Hospital, Philadelphia, on account of the appropriation relating
13 to Tay-Sachs disease provided for in section 1 shall be made by
14 the Secretary of Health in equal quarterly payments, and shall
15 be conditioned upon a program which shall include the detection
16 of Tay-Sachs disease in the community, counselling of
17 individuals and families, education of the public institution,
18 coordination of research into the treatment for Tay-Sachs
1 disease and the expansion of genetic diagnostic services and
2 treatment of persons with the disease.
3 Section 3. Jefferson Medical College and Hospital shall
4 provide such information as may be necessary to carry out the
5 provisions of this act and in such form and manner as the
6 Department of Health shall prescribe.
7 Section 4. This act shall take effect July 1, 1983 or, if
8 enacted subsequent to that date, then immediately.
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