PRINTER'S NO. 1162
No. 1040 Session of 1997
INTRODUCED BY COWELL, STAIRS, MUNDY, SCHULER, STEELMAN, STURLA, PLATTS, HERMAN, BATTISTO, ROBINSON, ITKIN, COY, E. Z. TAYLOR, READSHAW, MELIO, MARKOSEK, SEMMEL, HORSEY, BOSCOLA, YOUNGBLOOD, TIGUE, O'BRIEN, BEBKO-JONES, TRELLO, DALEY, BELARDI, GIGLIOTTI, WALKO, ROONEY, SHANER, LaGROTTA, LAUGHLIN, WOJNAROSKI, BLAUM, TRICH, McCALL, PISTELLA, C. WILLIAMS, STABACK, MIHALICH, LEVDANSKY, DeLUCA, JOSEPHS, SAINATO AND VAN HORNE, MARCH 25, 1997
REFERRED TO COMMITTEE ON EDUCATION, MARCH 25, 1997
AN ACT 1 Amending the act of December 19, 1990 (P.L.1372, No.212), 2 entitled "An act providing for early intervention services 3 for infants, toddlers and preschool children who qualify; 4 establishing the Interagency Coordinating Council and 5 providing for its powers and duties; and conferring powers 6 and duties upon the Department of Education and the State 7 Board of Education, the Department of Health and the 8 Department of Public Welfare," further providing for 9 intervention services for infants, toddlers and eligible 10 young children with disabilities; expanding the membership of 11 the Interagency Coordinating Council; further providing for 12 the expenditure of certain appropriations; and making 13 editorial changes. 14 The General Assembly of the Commonwealth of Pennsylvania 15 hereby enacts as follows: 16 Section 1. Sections 102, 103, 104, 105(c), 106, 301, 304(c) 17 and 501 of the act of December 19, 1990 (P.L.1372, No.212), 18 known as the Early Intervention Services System Act, are amended 19 to read: 20 Section 102. Legislative findings for early intervention.
1 (a) Needs.--The General Assembly finds that there is a need 2 to: 3 (1) Increase the opportunity for the development of 4 infants, toddlers and eligible young children [who are 5 handicapped] with disabilities in order to minimize their 6 potential for developmental delay. 7 (2) Minimize the need for special education services as 8 these infants, toddlers and eligible young children [who are 9 handicapped] with disabilities attain the age of beginners. 10 (3) Reduce the number of [handicapped] individuals with 11 disabilities being placed in institutions and enhance their 12 potential for independent living in society. 13 (4) Assist the families of [handicapped] infants and 14 toddlers with disabilities to meet their children's special 15 needs. 16 (5) Implement the provisions of Parts B and H in order 17 to be eligible to receive Federal funding to help establish 18 and maintain programs and services to assist [handicapped] 19 infants[,] and toddlers with disabilities and their families 20 and eligible young children. 21 (b) Remedy.--The General Assembly further finds that early 22 intervention services for [handicapped] infants[,] and toddlers 23 with disabilities and their families and eligible young children 24 are cost effective and effectively serve the developmental needs 25 of [children who are handicapped] these children. 26 Section 103. Definitions. 27 The following words and phrases when used in this act shall 28 have the meanings given to them in this section unless the 29 context clearly indicates otherwise: 30 "Age of beginners." The minimum age established by the 19970H1040B1162 - 2 -
1 school district board of directors for admission to the 2 district's first grade under 22 Pa. Code § 11.15 (relating to 3 admission of beginners). 4 "Council." The Interagency Coordinating Council established 5 in section 106. 6 "Early intervention services." Developmental services which 7 meet all of the following: 8 (1) Are provided under public supervision. 9 (2) Are designed to meet the developmental needs of [a 10 handicapped infant, toddler] an infant or toddler with 11 disabilities or eligible young child in any of the following 12 areas: 13 (i) Physical development. 14 (ii) Cognitive development. 15 (iii) Sensory development. 16 (iv) [Language and speech] Communication development 17 or alternative communication development. 18 (v) [Psycho-social] Social-emotional development. 19 [(vi) Self-help skills.] 20 (vi) Adaptive development. 21 (3) [Are] For eligible infants and toddlers and their 22 families, are developed to meet the requirements of this act, 23 including, but not limited to, the following: 24 (i) Family training. 25 (ii) Social work services, including counseling and 26 home visits. 27 (iii) Special instruction. 28 (iv) Speech pathology and audiology. 29 (v) Occupational therapy. 30 (vi) Physical therapy. 19970H1040B1162 - 3 -
1 (vii) Psychological services. 2 (viii) Medical services only for diagnostic or 3 evaluation purposes. 4 (ix) Early identification, screening and assessment 5 services. 6 (x) Health services necessary to enable the infant 7 or toddler to benefit from the other early intervention 8 services. 9 (xi) Assistive technology devices and services. 10 [(xii) For handicapped infants and toddlers, other 11 services required by Part H.] 12 (xii) For infants and toddlers with disabilities, 13 other services required by Part H, such as nutrition, 14 service coordination services and transportation and 15 related costs that are necessary to enable an infant or 16 toddler and the infant's or toddler's family to receive 17 early intervention services. 18 (xiii) Vision services. 19 (4) Are provided by qualified personnel, including, but 20 not limited to, special educators, speech and language 21 pathologists and audiologists, occupational therapists, 22 physical therapists, psychologists, social workers, nurses 23 [and nutritionists.], nutritionists, family therapists, 24 orientation and mobility specialists, pediatricians and other 25 physicians. 26 (5) Are provided in conformity with an individualized 27 family service plan for eligible infants, toddlers and their 28 families. 29 [(6) Are provided to eligible young children in 30 compliance with the provisions of this act and Part B. 19970H1040B1162 - 4 -
1 Compliance includes procedural safeguards and free 2 appropriate public education, including related services and 3 individualized education programs.] 4 (6) For eligible young children, are developed to 5 include specialized instruction in compliance with this act 6 and Part B. Compliance, for this purpose, includes the 7 procedural safeguards and free appropriate education, 8 including related services and individualized education 9 programs, which are necessary to insure that compliance is 10 effected. These developmental services shall include, but not 11 be limited to, the following related services: 12 (i) Family training. 13 (ii) Social work services, including counseling and 14 home visits. 15 (iii) Speech pathology and audiology. 16 (iv) Occupational therapy. 17 (v) Physical therapy. 18 (vi) Psychological services. 19 (vii) Medical services, for diagnostic or evaluation 20 purposes only. 21 (viii) Early identification, screening and 22 assessment services. 23 (ix) Assistant technology devices and services. 24 (7) Are provided in the least restrictive natural 25 environment appropriate to the child's needs. Infants, 26 toddlers and eligible young children who will be served in a 27 non-home-based setting must, to the maximum extent consistent 28 with the child's abilities, receive early intervention 29 services in a setting with nonhandicapped children. Each 30 infant's or toddler's IFSP and each eligible young child's 19970H1040B1162 - 5 -
1 IEP must contain the recommended service option placement and 2 the rationale for why it represents the least restrictive 3 environment. 4 ["Education of the Handicapped Act." The Education of the 5 Handicapped Act (Public Law 91-230, 20 U.S.C. § 1401 et seq.).] 6 "Eligible young child." A child who is younger than the age 7 of beginners and at least three years of age and who meets any 8 of the following criteria: 9 (1) The child has any of the following physical or 10 mental disabilities: autism/pervasive developmental disorder, 11 serious emotional disturbance, neurological impairment, 12 deafness/hearing impairment, specific learning disability, 13 mental retardation, multihandicap, other health impairment, 14 physical disability, speech impairment or blindness/visual 15 impairment. 16 (2) The child is considered to have a developmental 17 delay, as defined by regulations of the State Board of 18 Education and the standards of the Department of Education. 19 "IEP." Individualized Education Program. 20 "IFSP." Individualized Family Service Plan. 21 "Individuals with Disabilities Education Act." The 22 Individuals with Disabilities Education Act (Public Law 91-230, 23 20 U.S.C. § 1400 et seq.). 24 ["Handicapped infants and toddlers."] "Infants and toddlers 25 with disabilities." Individuals ranging in age from birth to 26 two years of age, inclusive, who need early intervention 27 services for any of the following reasons: 28 (1) They are experiencing developmental delays, as 29 defined by regulations of the Department of Public Welfare 30 and as measured by appropriate diagnostic instruments and 19970H1040B1162 - 6 -
1 procedures in any of the following areas: cognitive 2 development, sensory development, physical development, 3 [language and speech development, psycho-social development 4 or self-help skills] communication development, social- 5 emotional development or adaptive development and are based 6 on informed clinical opinion and procedures. 7 (2) They have a diagnosed physical or mental condition 8 which has a high probability of resulting in developmental 9 delay under paragraph (1). This paragraph applies to 10 conditions with known etiologies and developmental 11 consequences. Examples of these conditions include Down 12 syndrome; other chromosomal abnormalities; sensory 13 impairments, including vision and hearing; inborn errors of 14 metabolism; microcephaly; severe attachment disorders, 15 including failure to thrive; seizure disorders; and fetal 16 alcohol syndrome. 17 ["IEP." Individualized Education Program. 18 "IFSP." Individualized Family Service Plan.] 19 "Informed clinical opinion." Documentation by a number of 20 qualified personnel, as contained in the definition of "early 21 intervention services," and is based on direct observation as 22 well as other knowledge of the child when there are no 23 standardized measures or the procedures are not appropriate for 24 the child's level of functioning or manifestation of the 25 disability or development areas. The multidisciplinary team will 26 then determine, through its informed clinical opinion, that a 27 child is eligible for early intervention services. 28 "Lead agency." For early intervention services to eligible 29 children from birth to two years of age, inclusive, the 30 Department of Public Welfare; for early intervention services to 19970H1040B1162 - 7 -
1 eligible young children, the Department of Education. 2 "Local interagency agreement." An agreement entered into by 3 local agencies receiving early intervention funds directly from 4 the Commonwealth and made under the State interagency agreement 5 providing for the delivery of early intervention services within 6 a specified geographic area. 7 "MAWA agency." An agency that enters into a mutually agreed- 8 upon written arrangement with the Department of Education. 9 "Mutually agreed-upon written arrangements." An agreement 10 between the Department of Education and intermediate units, 11 school districts or other public or private agencies to provide 12 early intervention services that comply with the early 13 intervention regulations of the State Board of Education and 14 early intervention standards of the Department of Education. 15 These agreements may include memoranda of understanding pursuant 16 to approved plans submitted to the Department of Education by 17 intermediate units and school districts. 18 "Part B." Part B of the [Education for the Handicapped] 19 Individuals with Disabilities Education Act (Public Law 91-230, 20 20 U.S.C. § 1411 et seq.), as it applies to preschool children. 21 "Part H." Part H of the [Education for the Handicapped] 22 Individuals with Disabilities Education Act (Public Law 91-230, 23 20 U.S.C. § 1471 et seq.). 24 "State interagency agreement." An agreement entered into by 25 the Department of Education, the Department of Health, the 26 Department of Public Welfare and any other Commonwealth agency 27 for the purposes of this act and of Part B and Part H. 28 Section 104. State interagency agreement. 29 (a) Interagency agreement.--The Department of Education, the 30 Department of Health and the Department of Public Welfare shall 19970H1040B1162 - 8 -
1 enter into and maintain a State interagency agreement to enable 2 the State and local agencies serving infants, toddlers and 3 eligible young children [who are handicapped] with disabilities 4 to establish working relationships that will increase the 5 efficiency and effectiveness of their early intervention 6 services. The agreement shall outline the responsibilities of 7 those State and local agencies and shall implement a coordinated 8 service delivery system through local interagency agreements. 9 (b) Components.--The State interagency agreement shall 10 address, at a minimum, the following issues: 11 (1) Responsibilities of State and local agencies. 12 (2) Eligibility determination and referrals. 13 (3) Establishment of local agreements. 14 (4) Fiscal responsibilities of the agencies. 15 (5) Dispute resolution between agencies. 16 (6) Payor of last resort. 17 (7) Maintenance of effort. 18 (8) Administrative management structure. 19 (9) Establishment and maintenance of local interagency 20 coordinating councils, which shall include, but not be 21 limited to, parents and private providers and which shall be 22 authorized to advise and comment on the development of local 23 interagency agreements for their specified geographic area 24 and to communicate directly with the Department of Education, 25 the Department of Health, the Department of Public Welfare 26 and the council regarding the local interagency agreement and 27 any other matters pertaining to this act. At least 50% of the 28 members of the local interagency coordinating council shall 29 be parents of infants or toddlers with disabilities or 30 eligible young children with disabilities who are 12 years of 19970H1040B1162 - 9 -
1 age or younger. The local interagency coordinating councils 2 are the duly recognized local body for the purposes of this 3 act. 4 (10) Plans by the Department of Health, the Department 5 of Public Welfare and the Department of Education to work 6 together to develop a coordinated system of [case management] 7 service coordination. 8 (c) Goal.--Issues under subsection (b) shall be addressed to 9 meet the requirements of this act and the provisions of Part B 10 and Part H. 11 Section 105. Other duties of State agencies. 12 * * * 13 (c) Annual reports.--By [July] October 31, the Department of 14 Health, the Department of Public Welfare and the Department of 15 Education shall submit annual reports to the council on the 16 status of early intervention services during the preceding 17 [calendar] fiscal year. These reports shall be used as the basis 18 for the report submitted by the council under section 106(f)(4). 19 Section 106. Council. 20 (a) Establishment.--The Interagency Coordinating Council is 21 established as the duly recognized council for the purposes of 22 this act. The council shall consist of [15] a minimum of 25 23 voting members but shall not exceed 30 voting members appointed 24 by the Governor. The council shall serve as the council required 25 by the [Education of the Handicapped Act Amendments of 1986 26 (Public Law 99-457, 100 Stat. 1145)] Individuals with 27 Disabilities Education Act. The term of office of the voting 28 members shall be three years, except for the cabinet officers or 29 their designees who shall serve as long as they are in office. 30 (b) Membership.--The membership of the council shall consist 19970H1040B1162 - 10 -
1 of the following: 2 (1) [Three] Six parents of [handicapped] infants, 3 toddlers or eligible young children with disabilities, 4 including minority parents, with knowledge of or experience 5 with programs for infants, toddlers or eligible young 6 children with disabilities. 7 (2) One [provider of a child development program, such 8 as] Head Start provider. 9 (3) One parent of a child with a disability who has 10 received early intervention services and is now beyond six 11 years of age. 12 [(4) Three providers of early intervention services, 13 including one school district provider, one intermediate unit 14 provider and one private provider.] 15 (4) Two public education providers of programs for 16 eligible young children with disabilities. 17 [(5) One member from the General Assembly.] 18 (5) Two members of the General Assembly, one from the 19 Senate and one from the House of Representatives. 20 (6) One representative of the American Academy of 21 Pediatrics. 22 (7) [One] Two county mental health/mental retardation 23 [administrator or designee] administrators. 24 (8) One individual who is directly involved in personnel 25 preparation. 26 (9) The Secretary of Education or a designee. 27 (10) The Secretary of Public Welfare or a designee. 28 (11) The Secretary of Health or a designee. 29 [(12) As ex officio members, who shall not have voting 30 privileges: a representative of the Developmental 19970H1040B1162 - 11 -
1 Disabilities Planning Council and members appointed by the 2 chair of the council.] 3 (12) The Insurance Commissioner or a designee. 4 (13) Two private providers of programs for infants and 5 toddlers with disabilities. 6 (14) One public or private provider of child care 7 services. 8 (15) Members at large, not to exceed seven, chosen to 9 represent diverse interests who have knowledge of or 10 experience with programs for infants, toddlers and eligible 11 young children with disabilities. 12 (c) Designees.--The designees of the cabinet officers under 13 subsection (b) must be deputy secretaries, commissioners or 14 bureau directors. 15 (d) Officers.--The chair of the council shall be appointed 16 by the Governor and must be selected from those members who are 17 neither employees of the Commonwealth nor elected officials. 18 (e) Committees.--The chair of the council may appoint 19 special committees, which may include nonmembers of the council, 20 to make recommendations to the council concerning key issues 21 related to this act. 22 (f) Powers and duties.--The council has the following powers 23 and duties: 24 (1) To review and comment to the Department of Health, 25 the Department of Public Welfare, the Department of Education 26 and the State Board of Education on draft regulations and 27 standards for the implementation and maintenance of a 28 Statewide system of early intervention services which are in 29 accordance with the provisions of this act and Parts B and H. 30 The council may advise and assist the lead agency for Part H 19970H1040B1162 - 12 -
1 and the Department of Education regarding the development of 2 and implementation of appropriate services for children ages 3 birth to age of beginners. 4 (2) To review and comment to the appropriate legislative 5 committees and the Independent Regulatory Review Commission 6 on regulations and standards proposed under this act. 7 (3) To assist and advise Commonwealth agencies in their 8 effort to carry out the provisions of this act. This 9 paragraph includes, but is not limited to: 10 (i) recommendations for the implementation and 11 maintenance of a Statewide comprehensive, coordinated, 12 multidisciplinary, interagency program, as described in 13 Chapter 3; 14 (ii) suggestions regarding sources of fiscal and 15 other support from Federal, State, local and private 16 sources, including insurance coverage; and 17 (iii) recommendations regarding in-service training 18 and personnel competencies. 19 (4) To prepare and submit, with the cooperation of the 20 Secretary of Education, the Secretary of Health and the 21 Secretary of Public Welfare, an annual report during the 22 month of [September] December to the Governor and the 23 Majority and Minority Chairmen of the Education Committee of 24 the Senate and the Education Committee of the House of 25 Representatives. This report shall include the number of 26 programs being provided by intermediate units, school 27 districts and public and private providers, including Head 28 Start; the number of children being served; the status of 29 compliance with State regulations and standards; descriptive 30 information on the programs; information on personnel needs; 19970H1040B1162 - 13 -
1 any suggested changes in State statutes and regulations 2 governing these programs; any information the United States 3 Secretary of Education may require; and any other information 4 the council deems appropriate. 5 (5) To meet at least six times a year. 6 (6) To perform other functions required of a state's 7 interagency coordinating council under Part H. 8 (g) Compensation of members.--The members shall serve 9 without compensation but shall be reimbursed for reasonable 10 costs incurred, including costs related to child care[.], except 11 that compensation shall be provided to a member of the council 12 if such member is not employed or must forfeit wages from other 13 employment when performing official council business. Employees 14 of the Commonwealth or any of its political subdivisions are 15 prohibited from receiving compensation except for reasonable 16 costs incurred. 17 (h) Staff.--Staff services for the council shall be provided 18 by the Department of Health, the Department of Public Welfare 19 and the Department of Education and shall include the 20 preparation and distribution of the annual report required under 21 subsection (f)(4). 22 Section 301. Requirements. 23 A Statewide system of coordinated, comprehensive, 24 multidisciplinary, interagency programs shall be established and 25 maintained by the Department of Health, the Department of Public 26 Welfare and the Department of Education to provide appropriate 27 early intervention services to all [handicapped] infants[,] and 28 toddlers with disabilities and their families and to eligible 29 young children. The system shall include the following minimum 30 components: 19970H1040B1162 - 14 -
1 (1) Compatible definitions of the term "developmental 2 delay" shall be promulgated and adopted by the Department of 3 Public Welfare, the Department of Health and the Department 4 of Education, with review and comment of the council under 5 section 106(f)(1). The definition shall provide for the 6 continuity of program services and shall be used in 7 implementing programs under this act. 8 (2) An assurance that appropriate early intervention 9 services are available to all eligible [handicapped] 10 infants[,] and toddlers with disabilities and their families 11 by September 1, 1991, and to all eligible young children by 12 July 1, 1991. 13 [(3) A timely, comprehensive, multidisciplinary 14 evaluation of the functioning of each handicapped infant, 15 toddler and eligible young child and the needs of the 16 families to assist appropriately in the development of the 17 handicapped infant, toddler and eligible young child.] 18 (3) A timely, comprehensive, multidisciplinary 19 evaluation of the strengths and needs of each infant and 20 toddler and eligible young child, the needs of the family and 21 the resources and priorities to assist appropriately in the 22 development of the infant, toddler and eligible young child 23 with a disability. 24 (4) For all [handicapped] infants[,] and toddlers with 25 disabilities and their families, an IFSP in accordance with 26 Part H, including [case management] service coordination 27 services in accordance with the service plan. 28 (5) For each eligible young child, an IEP in accordance 29 with Part B. 30 (6) A comprehensive child-find system, including a 19970H1040B1162 - 15 -
1 system for making referrals to service providers that 2 includes timelines and provides for the participation by 3 primary referral sources. 4 (7) A public awareness program focusing on early 5 identification of [handicapped] infants[,] and toddlers with 6 disabilities and eligible young children. 7 (8) A central directory, which includes early 8 intervention services, resources and experts available in 9 this Commonwealth and research and demonstration projects 10 being conducted in this Commonwealth. 11 (9) A comprehensive system of personnel development and 12 policies and procedures relating to the establishment and 13 maintenance of standards to ensure that personnel necessary 14 to carry out this act are appropriately and adequately 15 prepared and trained. 16 (10) A procedure for securing timely reimbursement of 17 funds. 18 (11) Procedural safeguards with respect to programs 19 under this act. 20 (12) A system for compiling data on the numbers of 21 [handicapped] infants[,] and toddlers with disabilities and 22 their families and eligible young children in need of 23 appropriate early intervention services; the number of 24 infants, toddlers and their families and eligible young 25 children served; and the types of services provided. 26 (13) A system of program standards evaluation and 27 compliance. 28 (14) An exit criteria, which provides procedures for a 29 child to exit from early intervention services. This exit 30 plan must address both the needs of the child who has 19970H1040B1162 - 16 -
1 attained age of beginners as well as the child who, at any 2 age between birth and age of beginners, no longer meets the 3 eligibility criteria. If a child has been successful in 4 obtaining age-appropriate behavior and abilities, the fact 5 that the child participated in early intervention services 6 may not be communicated to the school district unless the 7 parent so chooses, nor may it be considered as a rationale 8 for placement in public school age special education classes. 9 If the child does not meet exit criteria and the child's IEP 10 or IFSP demonstrates that the child will benefit from 11 services which can be provided only through special 12 education, nothing in this act shall prevent that placement. 13 In either case, transition services shall be provided to the 14 child and the child's parents. 15 (14.1) Policies and practices are adopted to ensure 16 meaningful involvement of traditionally underserved groups, 17 including minority, low-income and rural families, in the 18 planning and implementation of all the requirements of this 19 act and to ensure that such families have access to services 20 within their local areas. 21 (15) A system for the provision of services to children 22 from birth to age two, inclusive, which are in compliance 23 with Part H. 24 (16) A system for the provision of services to children 25 three years of age to age of beginners which is in compliance 26 with Part B, this act and regulations and standards. 27 Section 304. Administration by Department of Education. 28 * * * 29 (c) Public welfare.--The Secretary of Education shall 30 provide for the transition of eligible children, including 19970H1040B1162 - 17 -
1 [handicapped] infants and toddlers with disabilities, who, prior
2 to their third birthday, received services under Part H. The
3 Secretary of Education is authorized to accept responsibility
4 pursuant to delegation from the Secretary of Public Welfare
5 under section 303(c) for providing early intervention services
6 to children less than three years of age. The Secretary of
7 Education is authorized to delegate responsibility to the
8 Secretary of Public Welfare for providing services for certain
9 children over the age of three.
10 * * *
11 Section 501. Regulations and standards.
12 Regulations of the State Board of Education, 22 Pa. Code Ch.
13 14, published at 20 Pa.B. 3339 (June 16, 1990), and the
14 Department of Education Standards, 22 Pa. Code Ch. 342,
15 published at 20 Pa.B. 3357 (June 16, 1990), as approved by the
16 State Board of Education, governing the provision of early
17 intervention services, shall take effect upon their
18 reaffirmation by the State Board of Education. [The definition
19 of eligible young child in those regulations and standards is,
20 with regard to the reference to being two years and nine months
21 of age by September 1, superseded by the definition of eligible
22 young child in this act.] Should the State Board of Education
23 propose to make any revisions in the regulations at the time of
24 reaffirmation and at any time thereafter, the regulations shall
25 be subject to the provisions of the act of July 31, 1968
26 (P.L.769, No.240), referred to as the Commonwealth Documents
27 Law, the act of October 15, 1980 (P.L.950, No.164), known as the
28 Commonwealth Attorneys Act, and the act of June 25, 1982
29 (P.L.633, No.181), known as the Regulatory Review Act.
30 Section 2. This act shall take effect immediately.
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