adults with CF has steadily grown, and approximately 1,000 new
cases of CF are diagnosed each year; and
WHEREAS, Nearly 50% of the CF population is 18 years of age
and older, and people with CF have a variety of symptoms
attributed to the more than 1,800 mutations of the CF gene; and
WHEREAS, Infant blood screening to detect genetic defects is
the most reliable and least costly method to identify persons
likely to have CF; and
WHEREAS, Early diagnosis of CF permits early treatment and
enhances quality of life and longevity and the treatment of CF
depends on the stage of the disease and the organs involved; and
WHEREAS, Clearing mucus from the lungs is an important part
of the daily CF treatment regimen, and other types of treatments
include inhaled antibiotics and pancreatic enzymes, among
others; and
WHEREAS, There are 11 world-class treatment centers in this
Commonwealth which specialize in the diagnosis of CF and the
care of persons with CF; and
WHEREAS, Improving the length and quality of life for people
with CF starts with awareness; therefore be it
RESOLVED, That the House of Representatives designate the
month of May 2016 as "Cystic Fibrosis Awareness Month" in
Pennsylvania.
20160HR0863PN3280 - 2 -
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23