H1058B1609A00955 AJM:EJH 04/30/19 #90 A00955
AMENDMENTS TO HOUSE BILL NO. 1058
Sponsor: REPRESENTATIVE FRANKEL
Printer's No. 1609
Amend Bill, page 1, lines 1 through 4, by striking out all of
said lines and inserting
Providing for education about perinatal palliative care for
providers and information about perinatal palliative care for
patients that receive a diagnosis of a life limiting
condition; and imposing duties on the Department of Health.
Amend Bill, page 1, lines 15 through 18; page 2, lines 1
through 6; by striking out all of said lines on said pages
Amend Bill, page 2, lines 11 through 30; pages 3 and 4, lines
1 through 30; page 5, lines 1 through 11; by striking out all of
said lines on said pages and inserting
"Hospice." As defined in section 802.1 of the Health Care
Facilities Act.
"Life limiting condition." A health condition that carries a
high risk of mortality and either severely negatively impacts a
person's daily function or quality of life or excessively
strains the person's caregiver.
"Palliative care." Care that:
(1) focuses on expert assessment and management of pain
and other symptoms, assessment and support of caregiver needs
and coordination of care;
(2) attends to the physical, functional, psychological,
practical and spiritual consequences of a serious illness;
(3) is person-centered and family-centered, providing
people living with serious illness relief from the symptoms
and stress of an illness;
(4) through collaboration of an interdisciplinary care
team, improves quality of life for the patient and the
family; and
(5) can be offered in all care settings and at any stage
of a serious illness, including through bereavement.
Section 3. Perinatal palliative care.
(a) Information for health care practitioners.--The
2019/90AJM/HB1058A00955 - 1 -
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
27
28
29
30
31
32
33
department shall provide information about services available
through pediatric palliative care programs, including services
for perinatal patients, to health care practitioners whose
practice includes prenatal diagnosis, counseling or management.
(b) Information for patients.--When a health care
practitioner, in the health care practitioner's best clinical
judgment, believes it is appropriate, the health care
practitioner shall provide to the health care practitioner's
patient information regarding pediatric palliative care
programs, including hospice programs, that are able to care for
perinatal patients diagnosed with a life limiting condition.
Section 4. Department duties.
The department shall:
(1) Establish a program to provide education about
pediatric palliative care, including services for perinatal
patients, for health care practitioners whose practice
includes prenatal diagnosis, counseling or management.
(2) Administer this act and promulgate regulations to
implement this act.
Amend Bill, page 5, line 12, by striking out "6" and
inserting
5
2019/90AJM/HB1058A00955 - 2 -
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
See A00955 in
the context
of HB1058