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Pennsylvania House of Representatives
04/19/2024 09:22 PM
Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20150&cosponId=19803
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House of Representatives
Session of 2015 - 2016 Regular Session

MEMORANDUM

Posted: March 4, 2016 03:59 PM
From: Representative Marcy Toepel and Rep. Mark Longietti, Rep. Stephen McCarter
To: All House members
Subject: Designate February 29, 2016 as "Rare Disease Day" in Pennsylvania.
 
In the near future, we plan to introduce a House Resolution to designate February 29, 2016 as "Rare Disease Day" in Pennsylvania.
According to the National Institutes of Health (NIH), nearly 30 million Americans have rare diseases. A disease is considered rare if it affects fewer than 200,000 Americans. There are nearly 7,000 such diseases according to NIH. They tend to be serious and/or lifelong, and approximately two-thirds of those affected are children.

I invite you to join us in cosponsoring this resolution.

Please contact my office at 787-9501 if you have any questions.

Introduced as HR727