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Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20150&cosponId=18211
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House of Representatives
Session of 2015 - 2016 Regular Session

MEMORANDUM

Posted: April 28, 2015 04:00 PM
From: Representative Stephen Barrar
To: All House members
Subject: Urging Approval of GM604 from the FDA for ALS Patients
 
In the near future, I plan to introduce a House Resolution urging members of the Pennsylvania Congressional delegation to demand the approval of drug GM604 from the United States Food and Drug Administration (FDA) to help treat Amyotrophic Lateral Sclerosis (known as ALS or Lou Gehrig’s Disease).

ALS, a progressive neurodegenerative disease that affects the nerve cells in the brain and the spinal cord, has touched a late constituent of mine causing him to lose his ability to speak and swallow. In due time, the disease will progress causing him to lose his ability to walk, stand upright, grab objects, and any other independent function performed on a daily basis in everyday life making him completely immobile and dependent.

GM604, currently a trial drug, has proven its ability to slow down, stop and even reverse the effects of ALS and because the majority of ALS patients face certain paralysis and death, ALS presents a concrete case for GM604 to receive immediate approval by the United States FDA to treat the disease.

Just within the United States, more than 5,000 individuals are diagnosed annually with ALS and currently in the Commonwealth of Pennsylvania, more than 1,000 individuals have been formally diagnosed with the disease.

Please join me in supporting this House Resolution by urging the PA Congressional delegation to demand approval of GM604 from the FDA to provide relief to individuals suffering from this horrific, debilitating disease.



Introduced as HR337