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PRINTER'S NO. 1069
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No.
164
Session of
2017
INTRODUCED BY LANGERHOLC, SCARNATI, DINNIMAN, McGARRIGLE,
FONTANA, COSTA, RAFFERTY, BREWSTER, SABATINA, FARNESE,
MARTIN, KILLION, AUMENT, BOSCOLA, SCAVELLO, HUTCHINSON,
STREET, HUGHES AND VULAKOVICH, JUNE 30, 2017
INTRODUCED AND ADOPTED, JUNE 30, 2017
A RESOLUTION
Recognizing June 30, 2017, as "Arthrogryposis Awareness Day" in
Pennsylvania.
WHEREAS, Arthrogryposis, or arthrogryposis multiplex
congenita, comprises more than 300 different disorders, all
characterized by multiple joint contractures found throughout
the body at birth; and
WHEREAS, "Arthrogryposis" literally means curving of joints,
"multiplex" indicates more than one joint is affected and
"congenita" indicates the condition is present at birth; and
WHEREAS, The most common universal symptom of arthrogryposis
is contracture, meaning limited or absent movement around small
and large joints; and
WHEREAS, Often the muscles around affected joints are thin,
weak, stiff or missing, and extra tissue may have formed around
the joints holding them in place; and
WHEREAS, The overall prevalence of arthrogryposis is
estimated at 1 in every 3,000 live births; and
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WHEREAS, The specific symptoms of arthrogryposis and their
severity can vary dramatically from one child to another, with
some children being mildly affected while others are seriously
affected; and
WHEREAS, The most common type of arthrogryposis is called
amyoplasia, in which the hands, wrists, elbows, shoulders, hips,
feet and knees are affected and, in more severe types, every
joint can be affected, including the jaw and spine; and
WHEREAS, Arthrogryposis results from fetal akinesia, which is
characterized by a lack of fetal movement; and
WHEREAS, There is no cure for arthrogryposis, only treatment
to reduce the severity of the joint contractures and increase
muscle strength to maximize the function level of the
individual; and
WHEREAS, Treatment often includes stretching the joints
multiple times per day, serial casting, physical, occupational
and speech therapy, splinting, bracing, tendon release and
lengthening, surgical bone cutting, called ostcotomy, and
external fixators; and
WHEREAS, Arthrogryposis may be caused by genetic and
environmental factors, although the exact causes of
arthrogryposis are unknown; and
WHEREAS, More research needs to be done to find the causes of
arthrogryposis, to map the genes in genetic types and long-term
outcome studies of common surgical procedures performed;
therefore be it
RESOLVED, That the Senate recognize June 30, 2017, as
"Arthrogryposis Awareness Day" in Pennsylvania.
20170SR0164PN1069 - 2 -
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