PRINTER'S NO. 1209
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No.
200
Session of
2017
INTRODUCED BY MURT, BAKER, CALTAGIRONE, D. COSTA, DiGIROLAMO,
DUSH, GILLEN, HENNESSEY, KINSEY, LONGIETTI, MILLARD, NEILSON,
READSHAW AND SONNEY, APRIL 3, 2017
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35,
APRIL 3, 2017
A RESOLUTION
Designating the month of May 2017 as "SPG47 Awareness Month" in
Pennsylvania.
WHEREAS, SPG47, also known as hereditary spastic paraplegia,
type 47, is an ultra-rare neurodegenerative disease, with only
11 confirmed cases worldwide; and
WHEREAS, There is no known cure for SPG47; and
WHEREAS, The disease is caused by a mutation of the AP4B1
gene, which does not allow a child to produce a protein required
for the proper functioning of the central motor neurons in the
brain, delaying and eventually disabling the ability to walk;
and
WHEREAS, SPG47 affects two children in the United States, one
of whom resides in this Commonwealth; and
WHEREAS, More research is needed in order to create a
treatment and discover a cure; therefore be it
RESOLVED, That the House of Representatives designate the
month of May 2017 as "SPG47 Awareness Month" in Pennsylvania;
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and be it further
RESOLVED, That by bringing awareness to SPG47, those affected
will feel supported by this Commonwealth through the search for
a treatment and a cure.
20170HR0200PN1209 - 2 -
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