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House of Representatives
Session of 2015 - 2016 Regular Session

MEMORANDUM

Posted:	May 24, 2016 12:36 PM
From:	Representative Fred Keller
To:	All House members
Subject:	Resolution designating September 2016 as Chiari Malformation Awareness Month in Pennsylvania.

In the near future I plan to introduce a resolution designating September 2016 as Chiari Malformation Awareness Month in Pennsylvania. Chiari Malformation, a serious neurological condition, is frequently misdiagnosed and misunderstood, even by many in the medical community. Improving awareness is an important step in ensuring those who suffer from this condition receive prompt and adequate treatment. In patients with Chiari Malformation, the cerebellum descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and restricting the flow of cerebrospinal fluid. This compression can cause severe health consequences including extreme headaches, nerve damage, loss of certain motor functions, dizziness, weakness, vision loss, heart palpitations, balance issues, cognitive issues, sleep apnea and depression. Many who suffer from this disease without a proper diagnosis end up bed-ridden or in a wheelchair due to neurological damage. Although the cause of Chiari Malformation is unknown, the National Institute of Neurological Disorders and Stroke of the National Institutes of Health is conducting research to find alternative surgical options and identify the causes of the malformations to create improved treatment and prevention plans. Please join me in co-sponsoring this resolution to bring attention and awareness to this serious condition.

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