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Pennsylvania House of Representatives
04/19/2024 06:00 PM
Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20130&cosponId=18905
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House of Representatives
Session of 2013 - 2014 Regular Session

MEMORANDUM

Posted: September 1, 2015 02:44 PM
From: Representative Angel Cruz
To: All House members
Subject: Resolution Designating September 2015 as “Leukodystrophy Awareness Month”
 
I plan to introduce a resolution recognizing September 2015 as “Leukodystrophy Awareness Month” in Pennsylvania.

Leukodystrophies are a varied assortment of central nervous system disorders characterized by the gradual and progressive loss of neural tissue or nerve cells. These disorders are progressive, meaning that they tend to get worse throughout the life of the patient.

You may recall that my legislation (Act 148 of 2014), which requires hospitals in Pennsylvania to screen newborns for Krabbe, a leukodystrophy, became law last October.

As part of my continued efforts to bring awareness to newborn screening and rare genetic disorders, I am asking that you co-sponsor my resolution. Thank you in advance for your consideration.

If you have any questions or concerns, please contact my Harrisburg office at 717-705-1925.


Introduced as HR478