PRINTER'S NO. 2046
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No.
418
Session of
2015
INTRODUCED BY WOZNIAK, AUGUST 30, 2016
INTRODUCED AND ADOPTED, AUGUST 30, 2016
A RESOLUTION
Designating September 2016 as "Charcot-Marie-Tooth Disease
Awareness Month" in Pennsylvania.
WHEREAS, Charcot-Marie-Tooth (CMT) disorder, a disease of the
nerves that control muscles, is the most commonly inherited
peripheral neuropathy, affecting one in 2,500 people worldwide,
including approximately 5,080 people in Pennsylvania; and
WHEREAS, The disorder, named after the three physicians who
discovered it in 1886, Jean Charcot, Pierre Marie and Howard
Henry Tooth, is characterized by a slow and progressive
degeneration of the muscles in the feet, lower legs, hands and
arms, causing loss of normal function and sensation that can be
severely disabling and may be accompanied by chronic pain and
overwhelming fatigue; and
WHEREAS, Patients with CMT must constantly advocate on their
own behalf to doctors, medical professionals and educators who
are often unaware of, or insufficiently educated about, the
disorder, its symptoms and the obstacles faced by those affected
by the disorder; and
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WHEREAS, The mission of the Charcot-Marie-Tooth Association
(CMTA) is to support the development of new drugs to treat CMT,
to improve the quality of life for people with CMT and
ultimately to find a cure for CMT; and
WHEREAS, The CMTA's Strategy to Accelerate Research (STAR)
initiative is making great strides in developing therapies for
CMT through innovative public/private partnerships with the
National Institutes of Health and universities and laboratories
worldwide in the search for a treatment for CMT; and
WHEREAS, In an effort to encourage research and raise
awareness, the Commonwealth of Pennsylvania joins the CMTA and
other interested agencies and organizations in recognizing the
challenges of CMT patients and families in living with this
disease; therefore be it
RESOLVED, That the Senate designate September 2016 as
"Charcot-Marie-Tooth Disease Awareness Month" in Pennsylvania.
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