PRIOR PRINTER'S NOS. 3206, 3361
PRINTER'S NO. 3841
THE GENERAL ASSEMBLY OF PENNSYLVANIA
INTRODUCED BY MARSHALL, MAHER, TURZAI, MUSTIO, READSHAW, P. COSTA, MATZIE, D. COSTA, KAUFFMAN, SONNEY, KILLION, B. BOYLE, MILLARD, TALLMAN, KINSEY, MARSICO, GODSHALL, SWANGER, COHEN, D. MILLER, BIZZARRO, V. BROWN, M. K. KELLER, BARRAR, CALTAGIRONE, KAVULICH, WHITE, THOMAS, DENLINGER, YOUNGBLOOD, GINGRICH, ROCK, FARRY, McNEILL, COX, DiGIROLAMO, STERN, R. MILLER, GROVE, VEREB, BROOKS, HICKERNELL, GIBBONS, MOUL, C. HARRIS, OBERLANDER, MURT, GALLOWAY, WATSON, DeLUCA, MENTZER, REESE, EVERETT, DELOZIER, KORTZ, RAPP AND AUMENT, MARCH 19, 2014
SENATOR VANCE, PUBLIC HEALTH AND WELFARE, IN SENATE, AS AMENDED, JUNE 25, 2014
6Section 1. Short title.
9Section 2. Definitions.
13"Department." The Department of Health of the Commonwealth.
4"Health care practitioner." A person who is licensed,
5certified or otherwise authorized by law or regulation to
6provide or render health care services or genetic counseling to
7expectant or new parents.
8Section 3. Dissemination of information on Down syndrome.
9(a) Requirement.--A health care practitioner that
10administers, or causes to be administered, a test for Down
11syndrome to an expectant or new parent shall, upon receiving a
12test result that is positive for Down syndrome, provide the
13expectant or new parent with educational information made
14available by the department under section 4.
15(b) Compliance.--Delivery of information prepared by the
16department in accordance with section 4 at the time genetic
17results or diagnostic conclusions are provided shall constitute
18compliance with this section.
19Section 4. Informational publications by department.
23(1) Up-to-date, evidence-based information about Down
24syndrome that has been reviewed by medical experts and
25national Down syndrome organizations. The information
26provided shall include the following:
29(ii) Life expectancy.
30(iii) Clinical course.
1(iv) Intellectual and functional development.
2(v) Treatment options.
7(i) Information hotlines specific to Down syndrome.
8(ii) Relevant resource centers or clearinghouses.
11 <-(A) Parent to Parent of Pennsylvania.
12 (B) Pennsylvania Early Intervention.
<-15(iv) Education and support programs.
16(b) Form.--The information provided in accordance with this
17act shall conform to the applicable standard or standards
18provided in the Enhanced National Standards for Culturally and
19Linguistically Appropriate Services in Health and Health Care as
20adopted by the United States Department of Health and Human
21Services and published in the Federal Register on September 24,
23Section 5. Effective date.
24This act shall take effect in 60 days.