PRIOR PRINTER'S NO. 3206
PRINTER'S NO. 3361
THE GENERAL ASSEMBLY OF PENNSYLVANIA
INTRODUCED BY MARSHALL, MAHER, TURZAI, MUSTIO, READSHAW, P. COSTA, MATZIE, D. COSTA, KAUFFMAN, SONNEY, KILLION, B. BOYLE, MILLARD, TALLMAN, KINSEY, MARSICO, GODSHALL, SWANGER, COHEN, D. MILLER, BIZZARRO, V. BROWN, M. K. KELLER, BARRAR, CALTAGIRONE, KAVULICH, WHITE, THOMAS, DENLINGER, YOUNGBLOOD, GINGRICH, ROCK, FARRY, MCNEILL, COX, DiGIROLAMO, STERN, R. MILLER, GROVE, VEREB, BROOKS, HICKERNELL, GIBBONS, MOUL, C. HARRIS, OBERLANDER, MURT, GALLOWAY, WATSON, DeLUCA, MENTZER, BROWNLEE, REESE, EVERETT AND DELOZIER, MARCH 19, 2014
AS REPORTED FROM COMMITTEE ON HEALTH, HOUSE OF REPRESENTATIVES, AS AMENDED, APRIL 9, 2014
6Section 1. Short title.
9Section 2. Definitions.
13"Department." The Department of Health of the Commonwealth.
<-14"Down syndrome." A chromosomal condition caused by an error
3"Health care practitioner." <-A health care practitioner that
4provides prenatal or postnatal care or genetic counseling to
5expectant or new parents. <-A person who is licensed, certified or
6otherwise authorized by law or regulation to provide or render
7health care services or genetic counseling to expectant or new
9Section 3. Dissemination of information on Down syndrome.
10(a) Requirement.--A health care practitioner that
11administers, or causes to be administered, a test for Down
12syndrome to an expectant or new parent shall, upon receiving a
13test result that is positive for Down syndrome, provide the
14expectant or new parent with educational information made
15available by the department under section 4.
16(b) Compliance.--Delivery of information prepared by the
17department in accordance with section 4 at the time genetic
18results or diagnostic conclusions are provided shall constitute
19compliance with this section.
20Section 4. Informational publications by department.
24(1) Up-to-date, evidence-based<-, printed information
25about Down syndrome that has been reviewed by medical experts
26and national Down syndrome organizations. The information
27provided shall include the following:
30(ii) Life expectancy.
1(iii) Clinical course.
2(iv) Intellectual and functional development.
3(v) Treatment options.
8(i) Information hotlines specific to Down syndrome.
9(ii) Relevant resource centers or clearinghouses.
<-12(A) The Jerome Lejeune Foundation USA.
13(B) <-(A) Parent to Parent of Pennsylvania.
<-14(C) (B) Pennsylvania Early Intervention.
20(c) (b) Form.--<-The information provided under this section
21shall be culturally and linguistically appropriate for the
22intended recipients of the information. <-The information provided
23in accordance with this act shall conform to the applicable
24standard or standards provided in the Enhanced National
25Standards for Culturally and Linguistically Appropriate Services
26in Health and Health Care as adopted by the United States
27Department of Health and Human Services and published in the
28Federal Register on September 24, 2013.
29Section 5. Effective date.
30This act shall take effect in 60 days.