PRINTER'S NO. 3206
THE GENERAL ASSEMBLY OF PENNSYLVANIA
INTRODUCED BY MARSHALL, MAHER, TURZAI, MUSTIO, READSHAW, P. COSTA, MATZIE, D. COSTA, KAUFFMAN, SONNEY, KILLION, B. BOYLE, MILLARD, TALLMAN, KINSEY, MARSICO, GODSHALL, SWANGER, COHEN, D. MILLER, BIZZARRO, V. BROWN, M. K. KELLER, BARRAR, CALTAGIRONE, KAVULICH, WHITE, THOMAS, DENLINGER, YOUNGBLOOD, GINGRICH, ROCK, FARRY, MCNEILL, COX, DiGIROLAMO, STERN, R. MILLER, GROVE, VEREB AND BROOKS, MARCH 19, 2014
REFERRED TO COMMITTEE ON HEALTH, MARCH 19, 2014
6Section 1. Short title.
9Section 2. Definitions.
13"Department." The Department of Health of the Commonwealth.
1Section 3. Dissemination of information on Down syndrome.
2(a) Requirement.--A health care practitioner that
3administers, or causes to be administered, a test for Down
4syndrome to an expectant or new parent shall, upon receiving a
5test result that is positive for Down syndrome, provide the
6expectant or new parent with educational information made
7available by the department under section 4.
8(b) Compliance.--Delivery of information prepared by the
9department in accordance with section 4 at the time genetic
10results or diagnostic conclusions are provided shall constitute
11compliance with this section.
12Section 4. Informational publications by department.
15(1) Up-to-date, evidence-based, printed information
16about Down syndrome that has been reviewed by medical experts
17and national Down syndrome organizations. The information
18provided shall include the following:
21(ii) Life expectancy.
22(iii) Clinical course.
23(iv) Intellectual and functional development.
24(v) Treatment options.
27(i) Information hotlines specific to Down syndrome.
28(ii) Relevant resource centers or clearinghouses.
1(A) The Jerome Lejeune Foundation USA.
2(B) Parent to Parent of Pennsylvania.
3(C) Pennsylvania Early Intervention.
12Section 5. Effective date.
13This act shall take effect in 60 days.