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        PRIOR PRINTER'S NO. 1988                      PRINTER'S NO. 2680

THE GENERAL ASSEMBLY OF PENNSYLVANIA


HOUSE BILL

No. 1631 Session of 2001


        INTRODUCED BY SAMUELSON, PISTELLA, SCHULER, C. WILLIAMS, WATSON,
           PALLONE, ARMSTRONG, GRUCELA, SATHER, B. SMITH, YUDICHAK,
           MELIO, FREEMAN, SCRIMENTI AND HABAY, MAY 21, 2001

        AS AMENDED ON THIRD CONSIDERATION, HOUSE OF REPRESENTATIVES,
           OCTOBER 16, 2001

                                     AN ACT

     1  Relating to long-term care facility residents' rights; and
     2     providing for requirements for admission, care, transfer,
     3     discharge, funds and privacy of long-term care facility
     4     residents and for remedies., FOR REMEDIES AND FOR REPORT TO    <--
     5     GENERAL ASSEMBLY.

     6     The General Assembly finds and declares as follows:
     7         (1)  Long-term care facilities are a critical part of
     8     this Commonwealth's long-term care services system. It is the
     9     intent of the General Assembly that individuals who reside in
    10     long-term care facilities receive appropriate services, be
    11     treated with courtesy and continue to enjoy their basic civil
    12     and legal rights.
    13         (2)  It is further the intent of the General Assembly
    14     that long-term care facility residents have the opportunity
    15     to exercise reasonable control over life decisions. The
    16     General Assembly finds that choice, participation, privacy
    17     and the opportunity to engage in religious, political, civic,
    18     recreational and other social activities foster a sense of


     1     self-worth and enhance the quality of life for long-term care
     2     residents.
     3         (3)  The public interest would be best served by
     4     providing the same basic resident rights in all long-term
     5     care settings. Residents in nursing facilities are guaranteed
     6     certain rights by Federal law and regulation under section
     7     1919 of the Social Security Act (49 Stat. 620, 42 U.S.C. §
     8     1396r) and 42 CFR Pt. 483 (relating to requirements for
     9     states and long-term care facilities). It is the intent of
    10     the General Assembly to extend those basic rights to
    11     residents in personal care homes, boarding homes and adult
    12     day-care facilities.
    13         (4)  It is further the intent of the General Assembly
    14     that a facility should care for its residents in a manner and
    15     in an environment that promotes maintenance or enhancement of
    16     each resident's quality of life. A resident should have a
    17     safe, clean, comfortable and homelike environment allowing
    18     the resident to use his or her personal belongings to the
    19     extent possible. The rights set forth in this act are the
    20     minimal rights guaranteed to all residents of long-term care
    21     facilities and are not intended to diminish rights set forth
    22     in Federal or State law that may contain additional rights.
    23                         TABLE OF CONTENTS
    24  Section 1.  Short title.
    25  Section 2.  Definitions.
    26  Section 3.  Exercise of rights.
    27  Section 4.  Rights and quality of life.
    28  Section 5.  Rights and services upon admission.
    29  Section 6.  Admissions, disclosures and contracts.
    30  Section 7.  Notification of changes in resident's condition.
    20010H1631B2680                  - 2 -

     1  Section 8.  Facility service capability, transfer and discharge.
     2  Section 9.  Protection of residents' funds.
     3  Section 10.  Privacy of records.
     4  Section 11.  Grievances.
     5  Section 12.  Remedies.
     6  Section 13.  Examination of inspection results; contact with
     7                 advocates.
     8  Section 14.  Privacy in communications.
     9  Section 15.  Access and visitation.
    10  Section 16.  Personal property.
    11  Section 17.  Restraints.
    12  Section 18.  Abuse, punishment and seclusion.
    13  Section 19.  Waiver of liability and residents' rights limited.
    14  Section 20.  Conflict with Federal requirements.
    15  SECTION 21.  REPORT TO GENERAL ASSEMBLY.                          <--
    16  Section 21 22.  Effective date.                                   <--
    17     The General Assembly of the Commonwealth of Pennsylvania
    18  hereby enacts as follows:
    19  Section 1.  Short title.
    20     This act shall be known and may be cited as the Long-Term
    21  Care Residents' Rights Act.
    22  Section 2.  Definitions.
    23     The following words and phrases when used in this act shall
    24  have the meanings given to them in this section unless the
    25  context clearly indicates otherwise:
    26     "Chemical restraint."  A psychopharmacological drug that is
    27  used for discipline or convenience and not required to treat a
    28  resident's medical symptoms.
    29     "Facility."  A facility licensed by the Commonwealth to        <--
    30  provide long-term care. The term includes, but is not limited
    20010H1631B2680                  - 3 -

     1  to, a long-term nursing facility, a personal care home, a
     2  boarding home and an adult daily living center. The term does
     3  not include a boarding home that merely provides room, board and
     4  laundry services to residents who do not need scheduled or
     5  unscheduled adult daily living services.
     6     "FACILITY."  THE TERM MAY INCLUDE ANY OF THE FOLLOWING:        <--
     7         (1)  A LONG-TERM CARE NURSING FACILITY AS DEFINED IN
     8     SECTION 802.1 OF THE ACT OF JULY 19, 1979 (P.L.130, NO.48),
     9     KNOWN AS THE HEALTH CARE FACILITIES ACT.
    10         (2)  A PERSONAL CARE HOME AS DEFINED IN SECTION 1001 OF
    11     THE ACT OF JUNE 13, 1967 (P.L.31, NO.21), KNOWN AS THE PUBLIC
    12     WELFARE CODE.
    13     "FUNDAMENTAL ALTERATION."  A CHANGE OR MODIFICATION TO THE
    14  PROGRAM OR BUILDING THAT THE FACILITY CAN DEMONSTRATE WOULD
    15  CAUSE IT TO SUFFER AN UNDUE HARDSHIP WITH REGARD TO COST, NATURE
    16  AND SCOPE.
    17     "Physical restraint."  A manual method, obstacle or physical
    18  or mechanical device, material or equipment attached or adjacent
    19  to the resident's body that restricts freedom of movement or
    20  access to his or her body, is used for discipline or convenience
    21  and not required to treat a resident's medical symptoms.
    22     "Reasonable accommodation."  In relation to a facility and
    23  the needs of its prospective or current residents, the term has
    24  the meaning given under the Americans with Disabilities Act of
    25  1990 (Public Law 101-336, 104 Stat. 327) and other applicable
    26  Federal or State antidiscrimination laws and regulations.
    27     "Resident."  A person receiving services in a facility. The
    28  term also includes that resident's attorney-in-fact, guardian or
    29  other legal representative acting within the scope of his or her
    30  authority.
    20010H1631B2680                  - 4 -

     1     "TRANSFER AND DISCHARGE."  INCLUDES MOVEMENT OF A RESIDENT TO  <--
     2  A BED OUTSIDE OF THE FACILITY WHETHER THAT BED IS IN THE SAME
     3  PHYSICAL PLANT OR NOT. TRANSFER AND DISCHARGE DO NOT REFER TO
     4  MOVEMENT OF A RESIDENT TO A BED WITHIN THE SAME FACILITY.
     5  Section 3.  Exercise of rights.
     6     A resident has a right to a dignified existence, self-
     7  determination and communication with and access to persons and
     8  services inside and outside of the facility. A facility must
     9  protect and promote the rights of each resident and assist the
    10  resident as follows:
    11         (1)  The resident has the right to exercise his or her
    12     rights as a resident of the facility and as a citizen of the
    13     United States and a resident of this Commonwealth.
    14         (2)  The resident has the right to be free of
    15     interference, coercion, discrimination and reprisal from the
    16     facility, ITS STAFF AND ITS RESIDENTS in exercising his or     <--
    17     her rights.
    18         (3)  In the case of a resident that is judged incompetent
    19     by a court of competent jurisdiction, the rights of the
    20     resident are exercised by the person appointed to act on the
    21     resident's behalf.
    22         (4)  In the case of a resident who has not been adjudged
    23     incompetent by a court of competent jurisdiction, a
    24     representative may exercise the resident's rights to the
    25     extent provided by law.
    26  Section 4.  Rights and quality of life.
    27     (a)  General rule.--A facility must promote care for
    28  residents in a manner and in an environment that maintains or
    29  enhances each resident's dignity and respect in full recognition
    30  of his or her individuality.
    20010H1631B2680                  - 5 -

     1     (b)  Quality of life.--Within reasonable facility rules
     2  designed to protect the rights and quality of life of residents,
     3  a resident has the right to:
     4         (1)  Choose activities, schedules and health care SERVICE  <--
     5     AND PROVIDERS consistent with his or her interests,
     6     assessments and plans of care.
     7         (2)  Interact with members of the community both inside
     8     and outside of the facility.
     9         (3)  Make choices about aspects of his or her life in the
    10     facility which are significant to the resident.
    11         (4)  Wear his or her own clothing and determine his or
    12     her own dress, hair style or other personal effects according
    13     to individual preference.
    14         (5)  Unless adjudged incompetent or otherwise found to be
    15     incapacitated, participate in planning care and treatment or
    16     changes in care and treatment.
    17         (6)  Unless adjudged incompetent or otherwise found to be
    18     incapacitated, to direct his or her own service plan and
    19     changes in the service plan and to refuse any particular
    20     service so long as such refusal is documented in the record
    21     of the resident.
    22     (c)  Resident groups.--A resident has the right to organize
    23  and participate in resident groups in the facility. The
    24  following shall apply:
    25         (1)  If a resident group is organized, the facility must
    26     provide a meeting room if one exists.
    27         (2)  Staff or visitors may attend meetings at the
    28     resident group's invitation.
    29         (3)  When a resident or family group exists, a facility
    30     must listen to the views and act upon the grievances and
    20010H1631B2680                  - 6 -

     1     recommendations of residents and families concerning proposed
     2     policy and operational decisions affecting resident care and
     3     life in the facility.
     4     (d)  Services performed by resident.--A resident has the
     5  right to refuse to perform services for the facility except as
     6  voluntarily agreed by the resident and the facility in the
     7  resident's service plan.
     8     (e)  Participation in certain activities.--A resident has the
     9  right to participate in social, religious and community
    10  activities that do not interfere with the rights of other
    11  residents in the facility.
    12     (f)  Accommodation; change of room or roommate ROOM OR         <--
    13  ROOMMATE AND ABILITY OF CONSUMER TO ARRANGE FOR SUPPLEMENTAL
    14  SERVICES TO PERMIT AGING IN PLACE.--A resident has the right to:
    15         (1)  RESIDE AND RECEIVE CARE AND SERVICES IN THE FACILITY  <--
    16     365 DAYS A YEAR WITH NO PLANNED OR INTERMITTENT
    17     INTERRUPTIONS. NOTHING IN THIS PARAGRAPH SHALL PRECLUDE
    18     FACILITIES FROM ADJUSTING THEIR STAFFING LEVELS IN ACCORDANCE
    19     WITH A RESIDENT BEING ABSENT FROM A FACILITY FOR HOLIDAYS OR
    20     VACATIONS.
    21         (1) (2)  Reside and receive services in the facility with  <--
    22     reasonable accommodation of individual needs and preferences,
    23     INCLUDING THE ABILITY OF THE RESIDENT TO ARRANGE FOR           <--
    24     SUPPLEMENTAL SERVICES TO PERMIT AGING IN PLACE, except when
    25     the health or safety of the individual or other residents
    26     would be endangered.
    27         (2) (3)  Receive notice before the resident's room or      <--
    28     roommate in the facility is changed.
    29     (g)  Spouses.--A resident has the right to share a double
    30  room with his or her spouse when married residents live in the
    20010H1631B2680                  - 7 -

     1  same facility and both spouses consent to the arrangement.
     2     (H)  PUBLIC FUNDING.--A RESIDENT HAS THE RIGHT TO APPLY FOR    <--
     3  AND RECEIVE, IF DETERMINED ELIGIBLE, AVAILABLE PUBLIC FUNDING
     4  FOR CARE AND SERVICES AT ANY TIME PRIOR TO OR DURING RESIDENCY.
     5  AN APPLICANT WHO IS ELIGIBLE FOR PUBLIC FUNDING MAY NOT BE
     6  REQUIRED TO RESIDE AS A PRIVATE PAY RESIDENT FOR ANY DURATION OF
     7  TIME AS A CONDITION OF ADMISSION OR RESIDENCY.
     8  Section 5.  Rights and services upon admission.
     9     (a)  Notification.--A facility must inform the resident both
    10  orally and in writing in a language that the resident
    11  understands of his or her rights and all rules and regulations
    12  governing resident conduct and responsibilities during the stay
    13  in the facility. The notification must be made prior to or upon
    14  admission. Receipt of all the information under this section
    15  must be acknowledged in writing.
    16     (b)  Access to records.--A resident or his or her legal
    17  representative has the right:
    18         (1)  Upon an oral or written request, to access all
    19     records pertaining to himself or herself, including clinical
    20     records within 24 hours of the request.
    21         (2)  After receipt of his or her records for inspection,
    22     to purchase, at a cost not to exceed the community standard
    23     for photocopies, copies of the records or portions of them
    24     upon request and 15 10 working days' advance notice to the     <--
    25     facility.
    26     (c)  Admission.--A facility may only admit or retain
    27  individuals whose needs it can safely and appropriately serve in
    28  the facility with appropriate available staff and through the
    29  provision of reasonable accommodations required by Federal or
    30  State law. Except in cases of emergency, the facility may not
    20010H1631B2680                  - 8 -

     1  admit an individual before obtaining a thorough assessment BY AN  <--
     2  APPROPRIATE ASSESSOR AS PERMITTED BY LAW. ALL APPLICANTS SHALL
     3  BE INFORMED OF THEIR RIGHT TO AN INDEPENDENT ASSESSMENT BY AN
     4  APPROPRIATE ASSESSOR LOCATED AT AN AREA AGENCY ON AGING OR
     5  ANOTHER SITE NOT AFFILIATED WITH THE FACILITY. The assessment     <--
     6  shall contain, unless unavailable despite the best efforts of
     7  either the facility, the resident applicant and other interested
     8  parties, the following minimum information:
     9         (1)  Recent medical history.
    10         (2)  Necessary and contraindicated medications.
    11         (3)  A licensed medical or other health professional's
    12     diagnosis, unless the individual objects for religious
    13     reasons.
    14         (4)  Significant known behaviors or symptoms that may
    15     cause concern or require special care.
    16         (5)  Mental illness, except where protected by
    17     confidentiality laws.
    18         (6)  Level of personal care needs. ASSESSMENT SHALL        <--
    19     CONTAIN:
    20         (1)  A MEDICAL EVALUATION BY THE APPLICANT'S PHYSICIAN
    21     INDICATING THE RESIDENT'S HEALTH STATUS AND CERTIFYING THE
    22     RESIDENT'S LEVEL OF CARE NEEDS AND APPROPRIATENESS FOR THE
    23     FACILITY TYPE.
    24         (2)  RELEVANT MEDICAL HISTORY INCLUDING:
    25             (I)  NECESSARY AND CONTRAINDICATED MEDICATIONS.
    26             (II)  RELEVANT DIAGNOSIS AND CONDITIONS.
    27             (III)  ALLERGIES.
    28             (IV)  SIGNIFICANT KNOWN BEHAVIORS OR SYMPTOMS THAT
    29         MAY CAUSE CONCERN OR REQUIRE SPECIAL CARE.
    30             (V)  DIETARY SPECIFICATIONS.
    20010H1631B2680                  - 9 -

     1             (VI)  PERSONAL CARE NEEDS AS IDENTIFIED BY THE
     2         EVALUATION AND ASSESSMENT.
     3     (D)  RETENTION.--A FACILITY SHALL RETAIN AND NOT TRANSFER OR
     4  DISCHARGE A RESIDENT UNLESS:
     5         (1)  THERE IS NONPAYMENT OF FEES REQUIRED UNDER THE
     6     CONTRACT, AFTER REASONABLE GOOD FAITH EFFORTS TO OBTAIN
     7     PAYMENT, INCLUDING, WHERE APPROPRIATE, APPLICATION FOR
     8     AVAILABLE PUBLIC FUNDING.
     9         (2)  THE RESIDENT DEVELOPS A CONDITION OF A NATURE AND
    10     SEVERITY THAT THE LICENSING DEPARTMENT PRECLUDES BY
    11     REGULATION FROM BEING SERVED IN THAT FACILITY TYPE.
    12         (3)  THE RESIDENT'S NEEDS CANNOT BE MET BY THE FACILITY,
    13     EVEN WITH THE RESIDENT BRINGING IN SUPPLEMENTAL SERVICES FROM
    14     AN OUTSIDE PROVIDER, WITHOUT A FUNDAMENTAL ALTERATION TO THE
    15     PROGRAM OR FACILITY.
    16     (D) (E)  Resident preferences.--A facility shall within five   <--
    17  days after admission of the resident complete a list of the
    18  following preferences that shall become part of the resident's
    19  medical history RECORD:                                           <--
    20         (1)  Preferences as to daily social and visitation
    21     activities.
    22         (2)  Service preferences.
    23         (3)  Preferences regarding other issues important to the
    24     resident.
    25     (F)  ACCOMMODATION.--RESIDENT PREFERENCES SHALL BE REASONABLY  <--
    26  ACCOMMODATED BY THE FACILITY.
    27     (e) (G)  Additional notifications.--A facility must provide    <--
    28  each resident, in writing in a language the resident or his or
    29  her representative easily understands, before admission and at
    30  least once every 18 months thereafter OR IF ANY OF THE FOLLOWING  <--
    20010H1631B2680                 - 10 -

     1  ARE CHANGED:
     2         (1)  A copy of the facility's admission and discharge
     3     policies.
     4         (2)  A description of the facility internal grievance
     5     process, including the names, office location and telephone
     6     number of the facility personnel responsible for hearing and
     7     resolving complaints. EACH LICENSING ENTITY SHALL DETERMINE    <--
     8     UNIFORM STANDARDS FOR FACILITIES TO FOLLOW IN RESOLVING
     9     INTERNAL GRIEVANCES.
    10         (3)  Services, items and activities customarily available
    11     in the facility or arranged for by the facility as permitted
    12     by the facility's license.
    13         (4)  Advance directive information, including information
    14     on the right to have or not to have an advance directive.
    15         (5)  A list of charges for those services, items and
    16     activities, including charges for services, items and
    17     activities not covered by the facility's per diem rate or
    18     applicable public benefit programs.
    19         (6)  Changes in the availability or the charges for
    20     services, items or activities or of changes in the facility's
    21     rules. Except in emergencies, 30 days' advance notice must be
    22     given prior to the change.
    23         (7)  A description of the manner of protecting personal
    24     funds as provided in section 9.
    25         (8)  A written description of resident's rights that
    26     include:
    27             (i)  Telephone numbers of the local long-term care
    28         ombudsman program and the local area agency on aging.
    29             (ii)  A list of the names, addresses and telephone
    30         numbers of the appropriate State licensing departments.
    20010H1631B2680                 - 11 -

     1         This same document shall include a statement that the
     2         resident may file a complaint with the appropriate
     3         departments or with the long-term care ombudsman
     4         concerning alleged resident abuse, neglect and
     5         misappropriation of resident property in the facility.
     6     (f) (H)  Posting of information.--A facility shall also post   <--
     7  all the information provided to a resident in subsection (e)(5)   <--
     8  (G)(5) and (6) in a conspicuous location that is readily          <--
     9  accessible. All posted information shall be presented to the
    10  residents in a form that is readable and easily understood.
    11  Section 6.  Admissions, disclosures and contracts.
    12     (a)  Disclosures required.--Prior to admission, a facility
    13  that requires an admission fee, deposit or a minimum stay fee,
    14  by or on behalf of a person seeking admission to the facility,
    15  shall provide a resident or his or her representative, full
    16  disclosure, in writing in a language the resident or his or her
    17  representative understands, a statement of the amount of any
    18  admission fees, deposits, prepaid charges or minimum stay fees.
    19  The facility shall also disclose to the person or his or her
    20  representative the facility's advance notice or transfer
    21  requirements, WHICH SHALL COMPLY WITH SECTION 5, prior to         <--
    22  admission. In addition, the facility shall also fully disclose
    23  in writing prior to admission what portion of the deposits,
    24  admission fees, prepaid charges, or minimum stay fees will be
    25  refunded to the resident or his or her representative if the
    26  resident leaves the facility. Receipt of the disclosures
    27  required under this subsection must be acknowledged in writing.
    28  If the facility does not provide these disclosures, the
    29  deposits, admission fees, prepaid charges or minimum stay fees
    30  may not be kept by the facility. If a resident dies or is
    20010H1631B2680                 - 12 -

     1  hospitalized or is transferred to another facility for more
     2  appropriate care and does not return to the original facility,
     3  the facility shall refund any deposit or charges already paid
     4  less the facility's per diem rate for the days the resident
     5  actually resided or reserved or retained a bed in the facility,
     6  notwithstanding any minimum stay policy or discharge notice
     7  requirements, except that the facility may retain an additional
     8  amount to cover its reasonable, actual expenses incurred as a
     9  result of a private-pay resident's move, not to exceed five
    10  days' per diem charges, unless the resident has given advance
    11  notice in compliance with the admission agreement. A facility
    12  under this section is required to refund any and all refunds due
    13  the resident or his or her representative within 30 days from
    14  the resident's date of discharge from the facility. Nothing in
    15  this section applies to provisions in contracts negotiated
    16  between a facility and a certified health plan, health or
    17  disability insurer, health maintenance organization, managed
    18  care organization or similar entities.
    19     (b)  Admission contract.--Where a facility requires the        <--
    20  execution of THE FACILITY IS REQUIRED TO HAVE an admission        <--
    21  contract by or on behalf of an individual seeking admission to
    22  the facility, the terms of the contract shall be consistent with
    23  the requirements of this section AND OTHER LICENSING              <--
    24  REQUIREMENTS, and the terms of an admission contract by a
    25  facility shall be consistent with the requirements of this act.
    26  Section 7.  Notification of changes in resident's condition.
    27     (a)  Notifications.--
    28         (1)  A facility must immediately consult with the
    29     resident's physician and, if known, make reasonable efforts
    30     to notify the resident's legal representative or an
    20010H1631B2680                 - 13 -

     1     interested family member when there is:
     2             (i)  An accident involving the resident that requires
     3         or has the potential for requiring physician
     4         intervention.
     5             (ii)  A significant change in the resident's
     6         physical, mental or psychosocial status such as
     7         deterioration in health, mental or psychosocial status as
     8         a result of a life-threatening condition or clinical
     9         complication.
    10         (2)  The facility must promptly notify the resident or
    11     the resident's representative and shall make reasonable
    12     efforts to notify an interested family member, if known, when
    13     there is a change in the resident's room or roommate
    14     assignment.
    15     (b)  Recordkeeping.--The facility must record and update the
    16  address and telephone number of a resident's representative or
    17  interested family member, upon receipt of notice.
    18  Section 8.  Facility service capability, transfer and discharge.
    19     (a)  Service capability.--A facility shall fully disclose to
    20  potential residents or their legal representative the service
    21  capabilities of the facility prior to admission to the facility.
    22  If the care needs of an applicant who is Medicaid eligible are    <--
    23  in excess of the facility's service capabilities, the respective
    24  licensing department shall identify other care settings or
    25  residential care options consistent with Federal law, NOTIFY THE  <--
    26  APPLICANT AND LEGAL REPRESENTATIVE OF THE FACILITY'S
    27  DETERMINATION AND OTHER CARE SETTINGS IDENTIFIED, REFER THE
    28  APPLICANT AND LEGAL REPRESENTATIVE TO THE COUNTY AGENCY THAT CAN
    29  ASSIST IN PLACEMENT IN OTHER CARE SETTINGS.
    30     (b)  Facility obligations.--A facility must permit each
    20010H1631B2680                 - 14 -

     1  resident to remain in the facility and not transfer or discharge
     2  a resident from the facility unless:
     3         (1)  The transfer or discharge is necessary for the
     4     resident's welfare and the resident's needs cannot WITH        <--
     5     REASONABLE ACCOMMODATION be met in the facility. REASONABLE    <--
     6     ACCOMMODATION SHALL INCLUDE THE ALLOWANCE OF OBTAINING
     7     SUPPLEMENTAL SERVICES FROM A PROVIDER OUTSIDE OF THE LONG-
     8     TERM CARE FACILITY AND SHALL PRECLUDE FUNDAMENTAL ALTERATIONS
     9     IN THE FACILITY'S BASIC PROGRAM OR BUILDING.
    10         (2)  The safety of other individuals in the facility is
    11     endangered.
    12         (3)  The health of individuals in the facility would
    13     otherwise be endangered.
    14         (4)  The FACILITY HAS MADE A GOOD FAITH EFFORT TO OBTAIN   <--
    15     PAYMENT OF CONTRATUAL FEES AND THE resident has failed to
    16     make the required payment for his or her stay, provided that
    17     the failure to make payment is not based on the resident's
    18     failure to receive payment from a public benefit program.
    19         (5)  The facility ceases to operate.
    20     (c)  Transfer or discharge.--Before a long-term care facility
    21  transfers or discharges a resident, a facility must:
    22         (1)  First attempt through reasonable accommodations to
    23     avoid the transfer or discharge, unless agreed to by the
    24     resident.
    25         (2)  Notify the resident and the legal representative of
    26     the resident and make a reasonable effort to notify, if
    27     known, an interested family member of the transfer or
    28     discharge and the reasons for the move in writing and in a
    29     language and manner they understand.
    30         (3)  Record the reasons in the resident's record.
    20010H1631B2680                 - 15 -

     1         (4)  Include in the notice the items described in
     2     subsection (d)(3).
     3     (d)  Notice procedure.--
     4         (1)  Except as provided under paragraph (2), the notice
     5     of transfer or discharge required under subsection (c)(2)
     6     must be made by the facility at least 30 days before the
     7     resident is transferred or discharged.
     8         (2)  Notice may be made as soon as practicable before
     9     transfer or discharge when:
    10             (i)  The safety of individuals in the facility would
    11         be endangered.
    12             (ii)  The health of individuals in the facility would
    13         be endangered.
    14             (iii)  An immediate transfer or discharge is required
    15         by the resident's urgent medical needs.
    16             (iv)  A resident has not resided in the facility for
    17         30 days.
    18         (3)  The written notice specified in subsection (c)(2)
    19     must include the following:
    20             (i)  The reason for transfer or discharge.
    21             (ii)  The effective date of transfer or discharge.
    22             (iii)  The location to which the resident is
    23         transferred or discharged.
    24             (iv)  The name, address and telephone number of the
    25         State AND LOCAL long-term care ombudsman.                  <--
    26             (v)  For residents with developmental disabilities,
    27         the mailing address and telephone number of the agency
    28         responsible for the protection and advocacy of
    29         developmentally disabled individuals.
    30             (vi)  For residents who are mentally ill, the mailing
    20010H1631B2680                 - 16 -

     1         address and telephone number of the agency responsible
     2         for the protection and advocacy of mentally ill
     3         individuals.
     4     (e)  Preparation for transfer or discharge.--A facility must
     5  provide sufficient preparation and orientation to residents to
     6  ensure safe and orderly transfer or discharge from the facility.
     7     (f)  Readmission.--A resident discharged in violation of this
     8  section has the right to be readmitted immediately upon the
     9  first availability of a gender-appropriate bed in the facility.
    10     (g)  Discharge planning.--A facility must insure that a
    11  transfer or discharge is safe, orderly and appropriate to TO A    <--
    12  SETTING CAPABLE OF MEETING the resident's needs. The following
    13  shall apply:
    14         (1)  A FACILITY MAY NOT DISCHARGE A RESIDENT WITHOUT       <--
    15     WRITTEN NOTICE PURSUANT TO THIS ACT BEING PROVIDED TO THE
    16     RESIDENT AND LEGAL REPRESENTATIVE INDICATING THE REASON FOR
    17     THE PROPOSED TRANSFER OR DISCHARGE.
    18         (1) (2)  A facility may not discharge a resident either    <--
    19     with or without consent unless and until a discharge plan has
    20     been completed and signed by the resident or his legal
    21     representative that lists:
    22             (i)  The name and address of the facility OR OTHER     <--
    23         RESIDENTIAL SETTING to which the resident is being
    24         transferred.
    25             (ii)  A list of medical or care needs that the
    26         resident will need until the transfer is complete AND HOW  <--
    27         THOSE NEEDS WILL BE MET BY THE FACILITY.
    28             (III)  A LIST OF THE MEDICAL AND CARE NEEDS THAT THE
    29         RESIDENT WILL NEED AFTER THE TRANSFER IS COMPLETE AND HOW
    30         THEY WILL BE MET.
    20010H1631B2680                 - 17 -

     1             (IV)  THE REASON THE FACILITY IS DISCHARGING OR
     2         TRANSFERRING THE RESIDENT.
     3             (iii) (V) Any other special needs or preferences that  <--
     4         the resident has provided to the discharging facility.
     5         (2) (3)  A copy of the discharge plan shall be forwarded   <--
     6     to the facility OR OTHER SERVICE PROVIDER to which the         <--
     7     resident is transferred. A copy of the medical or care needs
     8     of the resident shall be provided to the individual or entity
     9     that is transferring the individual.
    10  Section 9.  Protection of residents' funds.
    11     (a)  General rule.--A resident has the right to manage his or
    12  her financial affairs. A facility may not require residents to
    13  deposit their personal funds with the facility NOR MAY A          <--
    14  FACILITY REQUIRE A RESIDENT TO MAKE THE FACILITY THE
    15  REPRESENTATIVE PAYEE AS A CONDITION OF ADMISSION OR RETENTION.
    16     (b)  Management of residents' funds.--Upon written
    17  authorization of a resident, if a facility agrees to manage the
    18  resident's personal funds, the facility must hold, safeguard,
    19  manage and account for the personal funds of the resident
    20  deposited with the facility as follows:
    21         (1)  The facility must deposit a resident's personal
    22     funds in excess of $50 in an interest-bearing account that is
    23     separate from any of the facility's operating accounts and
    24     that credits all interest earned on a resident's funds to
    25     that account. In pooled accounts, there must be a separate
    26     accounting for each resident's share.
    27         (2)  The facility must maintain a resident's personal
    28     funds that do not exceed $50 in a noninterest-bearing
    29     account, interest-bearing account or petty cash fund.
    30         (3)  The facility must establish and maintain a system
    20010H1631B2680                 - 18 -

     1     that assures a full and complete and separate accounting of
     2     each resident's personal funds entrusted to the facility on
     3     the resident's behalf. The system must preclude any
     4     commingling of resident funds with facility funds or with the
     5     funds of any person other than another resident. THE           <--
     6     ADMINISTRATOR MUST INSURE THAT RESIDENTS HAVE PROMPT ACCESS
     7     TO THEIR FUNDS. The individual financial record must be
     8     SUMMARIZED IN MONTHLY STATEMENTS PROVIDED TO AND OTHERWISE     <--
     9     available on request to the resident or his or her legal
    10     representative.
    11         (4)  Upon the death of a resident with personal funds
    12     deposited with the facility, the facility must convey within
    13     60 days the resident's funds and a final accounting of those   <--
    14     funds to the individual or probate jurisdiction administering
    15     the resident's estate. 30 DAYS AN ESTIMATED ACCOUNTING OF THE  <--
    16     RESIDENT'S FUNDS DEPOSITED AT THE FACILITY, AN ESTIMATE OF
    17     THE FINAL CHARGES BASED ON PRIOR MONTHLY CHARGES AND OTHER
    18     AVAILABLE INFORMATION, AND THE AMOUNT OF FUNDS ON DEPOSIT
    19     THAT EXCEED THE ESTIMATED FINAL CHARGES TO THE INDIVIDUAL OR
    20     PROBATE JURISDICTION ADMINISTERING THE RESIDENT'S ESTATE.
    21     WITHIN 60 DAYS OF THE DEATH OF A RESIDENT WITH PERSONAL FUNDS
    22     DEPOSITED WITH THE FACILITY, THE FACILITY MUST CONVEY A FINAL
    23     ACCOUNTING AND DISPERSE ANY REMAINING RESIDENT'S FUNDS TO THE
    24     INDIVIDUAL OR PROBATE JURISDICTION ADMINISTERING THE
    25     RESIDENT'S ESTATE.
    26         (5)  In the case of a resident who received long-term
    27     care services paid for by the Commonwealth, the funds and      <--
    28     accounting shall be sent to the Department of Public Welfare
    29     for determination of financial recovery. The department shall
    30     establish a release procedure that assures that funds not
    20010H1631B2680                 - 19 -

     1     subject to recovery are released within 60 days of receipt
     2     and are released for use for burial expenses. THE FACILITY     <--
     3     SHALL NOTIFY THE DEPARTMENT OF PUBLIC WELFARE OF THE DEATH
     4     AND THE NAME OF THE PERSON KNOWN TO BE EXECUTOR OF THE
     5     ESTATE.
     6  Section 10.  Privacy of records.
     7     A resident has the right to personal privacy and
     8  confidentiality of his or her personal and clinical records.
     9  Personal privacy includes accommodations, medical treatment,
    10  written and telephone communications, personal care, visits and
    11  meetings of family and resident groups. This does not require
    12  the facility to provide a private room for each resident.
    13  However, a resident may not be prohibited by the facility from
    14  meeting with guests in his or her bedroom if no roommates
    15  object. The resident may approve or refuse the release of
    16  personal and clinical records to an individual outside the
    17  facility unless otherwise provided by law.
    18  Section 11.  Grievances.
    19     A resident has the right to:
    20         (1)  Voice grievances. Grievances include those with
    21     respect to treatment that has been furnished as well as that
    22     which has not been furnished.
    23         (2)  Prompt efforts by the facility to resolve grievances
    24     the resident may have, including those with respect to the
    25     behavior of other residents.
    26         (3)  ASSURANCE THAT THE FOCUS IS ON HIS OR HER WELL-       <--
    27     BEING. IT IS ESSENTIAL THAT THE FOCUS IN GRIEVANCE RESOLUTION
    28     REMAIN ON INSURING THE HEALTH, SAFETY AND WELL-BEING OF THE
    29     RESIDENTS IN LONG-TERM CARE FACILITIES IN THIS COMMONWEALTH.
    30         (4)  PROTECTION AGAINST RETALIATING ACTION. THE FACILITY
    20010H1631B2680                 - 20 -

     1     SHALL NOT TAKE ANY ACTION AGAINST A RESIDENT IN RETALIATION,
     2     INCLUDING, BUT NOT LIMITED TO, THREATENING TO TRANSFER OR
     3     DISCHARGE, TRANSFERRING OR DISCHARGING, THREATENING TO
     4     INFRINGE OR INFRINGING ON ANY OF THE CONSUMER RIGHTS
     5     ARTICULATED IN THIS ACT, FOR THE RESIDENT'S VOICING OF
     6     GRIEVANCES.
     7  Section 12.  Remedies.
     8     The General Assembly intends that facility residents, their
     9  family members or guardians, long-term care ombudsman,
    10  protection and advocacy personnel identified in this act and
    11  others who may seek to assist facility residents use the least
    12  formal means available to satisfactorily resolve disputes that
    13  may arise regarding the rights conferred by this act. Wherever
    14  feasible, direct discussion with facility personnel or
    15  administrators should be employed. Failing that, and where
    16  feasible, recourse may be sought through Federal or State long-
    17  term care or nursing home licensing or other regulatory
    18  authorities. However, the procedures suggested in this section
    19  are cumulative and shall not restrict an agency or person from
    20  seeking a remedy provided by law or from obtaining additional
    21  relief based on the same facts, including any remedy available
    22  to an individual at common law.
    23  Section 13.  Examination of inspection results; contact with
    24                 advocates.
    25     A resident has the right to:
    26         (1)  Examine the results of the most recent inspection of
    27     the facility conducted by Federal or State inspectors and
    28     plans of correction in effect with respect to the facility. A
    29     notice that the results are available must be publicly posted
    30     with the facility's license, and the results must be made
    20010H1631B2680                 - 21 -

     1     available for examination by the facility in a conspicuous
     2     place readily accessible to residents.
     3         (2)  Receive information from departments, agencies or
     4     programs acting as resident advocates and be afforded the
     5     opportunity to contact these entities.
     6  Section 14.  Privacy in communications.
     7     A resident has the right to privacy in communications,
     8  including the right to:
     9         (1)  Send and promptly receive mail that is unopened.
    10         (2)  Have access to stationery, postage and writing
    11     implements at the resident's own expense.
    12         (3)  Have reasonable access to the use of a telephone
    13     where calls can be made without being overheard.
    14  Section 15.  Access and visitation.
    15     (a)  Access.--A resident has the right and a facility must
    16  not interfere with access to any resident by the following:
    17         (1)  Any representative of the Commonwealth.
    18         (2)  The resident's individual physician.
    19         (3)  The long-term care ombudsman.
    20         (4)  A department responsible for the protection and
    21     advocacy for mentally ill individuals.
    22         (5)  Subject to reasonable restrictions to protect the
    23     rights of others and to the resident's right to deny or
    24     withdraw consent at any time, immediate family or other
    25     relatives of the resident and others who are visiting with
    26     the consent of the resident.
    27         (6)  An agency responsible for the protection and
    28     advocacy for individuals with disabilities.
    29     (b)  Access to services.--A facility must provide reasonable
    30  access to a resident by his or her representative or an entity
    20010H1631B2680                 - 22 -

     1  or individual that provides health, social, legal or other
     2  services to the resident, subject to the resident's right to
     3  deny or withdraw consent at any time.
     4     (c)  Access to records.--A facility must allow
     5  representatives of the long-term care ombudsman to examine a
     6  resident's clinical records with the permission of the resident
     7  or the resident's legal representative and consistent with
     8  Federal and State law.
     9  Section 16.  Personal property.
    10     (a)  Personal property generally.--A resident has the right
    11  to retain and use personal possessions, including some
    12  furnishings, and appropriate clothing, as space permits, unless
    13  to do so would infringe upon the rights or health and safety of
    14  other residents.
    15     (b)  Storage.--A facility shall, upon request, provide the
    16  resident with a lockable container or other lockable storage
    17  space for small items of personal property, unless the
    18  resident's individual room is lockable with a key issued to the
    19  resident.
    20  Section 17.  Restraints.
    21     A resident has the right to be free from physical restraint
    22  and chemical restraint. This section does not require or
    23  prohibit facility staff from reviewing the judgment of the
    24  resident's physician in prescribing psychopharmacologic
    25  medications.
    26  Section 18.  Abuse, punishment and seclusion.
    27     A resident has the right to be free from verbal, sexual,
    28  physical and mental abuse, NEGLECT, FINANCIAL EXPLOITATION,       <--
    29  corporal punishment and involuntary seclusion.
    30  Section 19.  Waiver of liability and residents' rights limited.
    20010H1631B2680                 - 23 -

     1     No facility shall request residents to sign waivers of
     2  potential liability for losses of personal property or injury or
     3  to sign waivers of residents' rights set forth in this act or in
     4  applicable licensing or certification laws.
     5  Section 20.  Conflict with Federal requirements.
     6     If any part of this act is found to be in conflict with
     7  Federal requirements that are a prescribed condition to the
     8  allocation of Federal funds to the Commonwealth, the conflicting
     9  part of this act is inoperative solely to the extent of the
    10  conflict and with respect to the agencies directly affected, and
    11  this finding does not affect the operation of the remainder of
    12  this act in its application to the agencies concerned. The rules
    13  under this act shall meet Federal requirements that are a
    14  necessary condition to the receipt of Federal funds by the
    15  Commonwealth.
    16  SECTION 21.  REPORT TO GENERAL ASSEMBLY.                          <--
    17     WITHIN ONE YEAR OF THE EFFECTIVE DATE OF THIS SECTION, THE
    18  DEPARTMENT OF AGING SHALL PROVIDE TO THE GENERAL ASSEMBLY A
    19  REPORT ON PROGRAMS WITHIN THIS COMMONWEALTH AND THROUGHOUT THE
    20  UNITED STATES THAT SEEK TO MAXIMIZE THE EFFECTIVENESS OF
    21  CHARITABLE PHARMACEUTICAL PROGRAMS AND TO PROVIDE
    22  RECOMMENDATIONS FOR NEW LAWS AND INITIATIVES WITHIN THIS
    23  COMMONWEALTH TO ENHANCE THE ABILITY OF PENNSYLVANIANS TO TAKE
    24  ADVANTAGE OF SUCH PROGRAMS.
    25  Section 21 22.  Effective date.                                   <--
    26     This act shall take effect in 180 days. AS FOLLOWS:            <--
    27         (1)  SECTION 21 SHALL TAKE EFFECT IMMEDIATELY.
    28         (2)  THIS SECTION SHALL TAKE EFFECT IMMEDIATELY.
    29         (3)  THE REMAINDER OF THIS ACT SHALL TAKE EFFECT IN 180
    30     DAYS.
    E16L35BIL/20010H1631B2680       - 24 -